Pain that does not go away :(

Hi, I'm 18 years old and have mild cp. I've been having pains everywhere; lower back, legs, arms, feet and even fingers. Is this normal?

I have been to physio and taken painkillers but they don't seem to work :( Due to this I am feeling very low and miserable. I would really appreciate it if anyone could give me any advice on what to do.

10 Replies

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  • Hi asp,

    Sorry, I can't help. I too have mild cp - but I have no pain (and I'm now a 60 year old!) The only suggestion I can make, that seems to have benefitted others with cp, is to try Alexander Technique.

    John

  • I am 28 I have mild ataxic CP and yes there are times and days I have random pain in different joints, the only thing I've found to help is supports, rest or walk through the pain. Try not to get down about it. I had pain in my hip today and I was deciding what was best to do so I went for a walk into town and it improved, just depends what works but I find sitting or resting too long I get stiff and in pain but sometimes you need a day of rest just to recover. Have you done more than normal recently?

  • Thanks for your reply, the pain just comes and goes, but does not get any better whether I rest or walk. I've been quite relaxed recently. What kind of supports help you?

  • Yeah mine is the same sometimes you can't do anything and its still there, i had bad leg pain a few weeks ago for over a week and i thought i may have to go doctors but it disappeared again after about 8 annoying days of constant pain! No idea why it happened but it must be the CP. Go to a doctor if you feel you may need medication. When i was in a wheelchair i was taking ampitripuline but i had a reaction to it so had to stop it and there wasn't anything else that helped painkiller wise so they just told me i had to get on with it so that's what i try and do. I just bought some wrist and ankle supports from lidl or aldi can't remember but if I'm having bad ankles or wrists the supports normally help somehow but you can't wear them longer than 3 hours and sometimes it works and its gone or the pain is still there :( I've also got deep relief cream which is like voltarol but i find works much better. The problem is its hard to find the part that's hurting which is difficult with the cream because you need to get it on the sore points. Try and see a doctor and see what they say. That's good if you've been relaxed just not the pain :( hope it improves soon

  • Well I guess I just have to wait as I am on the waiting list to see a rheumatologist in two months as nothing else works :( I was given the strongest form of ibuprofen but that still didn't work, I've also tried voltarol but it doesn't relieve the pain. Thank you so much for your advice I hope you get some relief soon

  • Thank you :) it is a likelihood that it could be rheumatoid because with CP that is unfortunately something that can happen. Hope they can help you further. Keep me posted please

  • How did the rheumatologist go?

  • Hi there! I am a journalist filming a TV documentary about Cerebral Palsy for my dissertation - Looking for multiple case studies about how funding is difficult and how people are coping. It would be nice to see some case studies of real people getting through their difficulties and to speak out about their experiences to promote the cause and help other people get through it. If this is something you would be interested in helping me with feel free to get in touch with me.

    Email: shannon-stevenson@hotmail.com

    Hope all is well!

    Best wishes,

    Shannon

  • Shannon not sure if your still looking for people but I'm willing to help if you need me to

  • Hi! That would be great, the more help and different cases the better. Where are you located? If you could email me about your location and more about your condition then hopefully we can arrange an interview. I start filming from now up until April so there is plenty of time for organisation.

    Cheers, Shannon