Effects changing with age.

[ncmw12]

I seem to be having an unusually sore and tiring week. I know cp is non-progressive, but does it affect you more/differently as you get older? I'm 28. I suppose I ought to go to the doctor about it, but I'm very afraid of orthopaedics and orthotics because splints hurt so much and give you so many blisters. Please don't laugh. Sometimes I feel my joints are much older than I am.

[niceboots Volunteer]

I totally understand where you are coming from. I'm 26 and have found in the past 2-3 years things becoming tougher and being more tight and achy.

I started taking baclofen in january and that has helped make things alot more comfortable.

My advice to you would be to go and see your gp, and go through all the things that have started to change. It might be worth getting a refferal to a physio and or specialist.

[rcwallace21 Administrator]

Quite normal to feel this way. I feel like an 80 year old sometimes instead of 22.

Agree with nice boots re: advice.

[joanne54]

Non progressive????!!!! I am 59 . I have only slight CP but as I got to my mid twenty's the pains started. Wear n tear I was told. you will have to get used to it. Tried different pills some made my stomach bleed. have learnt to live with the different pains. Non progressive !!!! The condition makes your muscles move contrarily to your skeleton. causing wear and tear. I should have had a hip replacement at 26. But was told I'd need another after ten years. decided not to have it done .I don't go a few days with out spraining something. I have lived with pain. But the discrimination hurts just as bad.

[rcwallace21 Administrator]

Non progressive in the respect that most CP sufferers have an normal life expectancy. CP does not kill you but I agree it has muscular skeletal complications and other health problems.

[jackie6]

I have slight CP and up until my early twenties I was pretty active and then gradually everything got harder and more tiresome to do. Naively I put it down to laziness and possibly that did and still has got a part to play in it. I also have Epilepsy due to my having CP, so between the two, my meds and work I'm always shattered. Also about three years ago (I'm 45 now) my body, musculoskeletal, went on a fast downward spiral. In addition to this I was diagnosed with having Cervical Degenerative Disc Disease aswell, but now since joining this site I don't know if the two are actually connected? - wouldn't surprise me if they are! Hospital said can't do anything for me for any of my issues apart from a tiny bit of physio - which was hopeless, other than that more strong meds! Now awaiting to go back to hospital for another shot....see what they've got to say, but I won't be holding my breath!😶😄