I am a liver transplant recipient, long wait on the transplant list, 19 months, due to my type B blood. Usual complications that come with end stage decompensated cirrhosis. Transplanted August 2018 at the Royal Free and making an excellent recovery after a long journey.
Happy to ask for and give support to those who find themselves in a similar situation.
Mark
Hi mark ,
Nice to read of some good news ! Great your doing well even after your long wait
I'm neither pre or post transplant, just cirrhosis 12 yrs ,was decompensated, in a bad way in 2008 , glad to say so far ,compensated now ,have been for a while, under QEHB for regular 6 month check ups but had my may one put back untill Sept due to this virus
Best wishes Linda
I think that is just awesome Millie, that you turned it around. May you stay as strong as you are, always. Stay safe in this terrible time. Jaycee
Good morning Jaycee,
Thank you for your kind words, it wasnt easy at times , a few blips along the way and lots of cbt therapy and at the time aquarius meetings one to one , my sister was also and still is my rock since we lost our dad to cancer 7 yrs ago
Stay safe Jaycee and everyone
Linda x
I am sure it was all very fraught and full of many hurdles. Well done to your sister.
My children were my rocks.
It has been a hard time for you both.
I am sure your sister is so incredibly proud of you.
So proud.
Stay strong, stay safe. Jaycee
It was at time Jaycee, I do have three grown up children two sons and one daughter, my daughter is 40 yrs old , my one son 36 and then 32 , but they had their own families and to be honest their knowledge isn't as good as my sisters ,we both live on our own except my sister is a full time carer for her son ,she truly is one amazing lady😊
You have done so well Jaycee!! your a strong woman to go through what you have but may you have many many more years
Stay safe
Linda
H Mark. I've just been chatting here with Linda. She too used to frequent the same sight we did.
It was nice to see Mark as well xx
Hi Mark, such a joy that is all I can say, such a joy to see you here too. Jaycee
Hi Mark I hope you are keeping well and safe in this difficult time.
I hope you are being good? Self isolating, although I think you were pretty much there already, before this happened. Not sure where the time goes it seems to fly by. I hope you are getting food ok do you have someone to help ?
I find myself thinking of everyone, who has had a transplant, is waiting for one, Or even wishing for one, wondering how they are coping. It is so hard. Made all the worse with this covid 19. I am weirdly at peace, because we all have each other... if that makes sense. My friend is in the RF currently having just had his second transplant because of cholangitis. He has been in for one month now. They had him on a ventilator and I spoke to him today for the first time.
The fear that goes with all liver disease is awful. It is why sites like this are so very important.
Jaycee
Oh I'm so sorry to read of your friend Jaycee, I pray things improve xxx
Jaycee,
All good here thanks and hopefully everything is well with you? Funnily enough, I was thinking today that 19 months on a transplant list is good preparation for self isolation (if that makes sense?).
Yes, the days pass peacefully and it’s an absolute bonus to have a garden. I feel for the families, living in flats etc.
My heart goes out to those people who are waiting for a transplant and those very ill with liver disease. It must be so difficult in these surreal circumstances.
I often think about the amazing people who looked after me with courtesy, dignity and respect during the difficult times. The superhuman efforts that they are putting in right now.
No problems with getting food or medication, hopefully everyone here is in the same situation.
Stay safe and at peace, it’s a good time to reflect on life’s priorities.
Mark.
True all you said. Xxx sending you a self isolating hug. Jaycee
