LDN Research Trust
654 members903 posts

lupus sufferer

Hi everyone, I just joined, I'm fairly certain I have lupus, and am seeing a rhuematologist. I've been taking ldn over a year, and don't know if it helps or not, as lupus symptoms get worse and better on their own. I get full strength nalproxone and add filtered water to it to dose myself, that was the only way I could get it. Is anyone else here using ldn for lupus? I also have colitis and loss of taste and smell(that has gotten a little better)

3 Replies

Here is a link to testimonials on the Trust's website, scroll down Lupus into the search box - there are 10 to listen too. My issue is different, so I can't offer any personal experience.




I started LDN about 2 months ago, no changes yet. My doc says it can be very gradual. I hope it works. Stopped plaquinal after 5 years. That can be so bad for your eyes...


Are you taking it for lupus?


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