Thinking of LDN for fibro: Helenamrat6... - LDN Research Trust

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Thinking of LDN for fibro

Helenamrat66 profile image
3 Replies

Helenamrat66

Hi there, i'm new on here and found it by a paper trail. A research paper I read on fb discussed LDN and research has brought me here. I have contacted a private doctor and am hoping to start this soon. It sounds too good to be true but im keeping my fingers crossed that it might help me regain my life. I have fibromyalgia and depression and these conditions are robbing me of my life. What I would give to reduce fatigue and feel like a 'normal' person again! To be able to make arrangements to go meet a friend for coffee and actually be able to go! To have my grandsons round for a couple of hours and not spend the next day in bed! I've always had hope and refuse to give in to these conditions. X

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Helenamrat66
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3 Replies
Naturegirl profile image
Naturegirl

I have been on LDN for 15 months and can finally sleep at night again. However if I leave Lyrica 75mg out of the equation, I cannot sleep - the combo works for me. I certainly also have pain reduction. I have had fibro for over 30 year, but only knew what it is for the past 7 years. I live in Namibia Africa. Good luck I think everybody should try it. I also take low dose Lithium 20mg - 10mg am and 10mg pm - My fibro fog is not sooooo bad anymore :).

Warm regards from Africa.

Helenamrat66 profile image
Helenamrat66 in reply toNaturegirl

Thanks for your reply naturgirl. I'm so happy it's working and you feel better. I'm currently tapering off Tramadol and am unsure if I should wait till I'm off it to try LDN. I have a doc app for Fri so will discuss with GP But advice on here is great as it's real and from experience. I also take pregabalin which I want to stop too. I don't know what symptoms are side effects, withdrawals or fibro! Maybe when I get off the drugs I won't actually be as bad as I think I am!

Nickytink profile image
Nickytink in reply toHelenamrat66

I came off the pregablin as its defo not a friend of LDN. I'm glad I came off of it because I felt worse on pregablin. As soon as I was free of it I started the LDN. Tramadol is one of the few that can be taken with LDN as its opiate free so don't panic too much.

Get off the pregablin though! Lol

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