T3a: I was diagnosed last year with a... - Kidney Cancer Sup...

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Aymesie profile image
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I was diagnosed last year with a large rcc tumour ! I had a radical nephrectomy and am due my year scan in 3 weeks ! Anxiety kicking in x

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Aymesie profile image
Aymesie
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4 Replies
4thround profile image
4thround

I’m feeling ya! I have been at this for 11 years, maybe it’s a bit better with time.

MICHIGANDAVID profile image
MICHIGANDAVID

My wife is in the 6 year mark.

cnichole profile image
cnichole

I was diagnosed last year also. We only did a partial nephrectomy and unfortunately my margins were positive. We decided not to go back in until it comes back but I have scans ever 3-6 months. Seems the more time passes the more anxious I get for every scan. So far no new growth for me.

Good luck on your scan!

greg1976 profile image
greg1976

Most people have scanxiety as I call it. I had stage III with radical then scan at year and found it spread to thyroid, lung and lymph node between lungs. Lots of med and have been No Evidence of Disease for over two years! The advise to you is; make sure they do a full body scan including brain to get a baseline for future scans. Mine was discovered at the year scan as they had only scanned the stomach pelvis area and I had clear margins. You could go your entire life with it not coming back but will most likely have a little anxiety attached to the scans. Good luck.

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