where is the cure ?? and is any drug... - ITP Support Assoc...

ITP Support Association

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where is the cure ?? and is any drug co. working on one ???????????????????

exxxon profile image
4 Replies

this site is great but we need a cure …. Perdue or one of those pig drug co.s with all the money in the world can surely find us a cure ..just dreaming 2day but maybe not !! we should ban together and get letter's out to all the drug co.s and notify our senator's and congressmen .. I think the problem is there are so few of us and these pigs really can't make a trillion $ to find a cure .. any one know if and who is working to find a cure and help us ?? these people spend billion's to go the moon and mars .. what a joke that is . stay well my friends and happy new year .. jimmy

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exxxon profile image
exxxon
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4 Replies
RobertSp profile image
RobertSp

I was told that there are not enough of us to make the research worthwhile. Also we don't look sick enough to make a good poster for fund raising. I also think that a lot of deaths from ITP are listed as death from trauma such as bleeding. Government research funding is decided on the number of situations where this is the cause of death. By all means, write to your senator and congressman/woman.

Also note that many of the drugs used to treat ITP were actually developed to stop organ rejection after transplants. Evidently that is a more news worthy medical topic.

CDmom profile image
CDmom

I want to say to the researchers that I was cured from a 7 month serious platlet crashing and every 2 weeks IVIG injection ITP ride within one month after a Sept 2017 Rife treatment and 2 weeks of Parasite medication. Rife is ultrasonic waves (like an opera singer breakes a glass with voice) that target the cell membrane walls of the parasites, virus, fungus or whatever it was that I caught on my trip to Costa Rica in March 2017 that caused my body to attact its platelets. I hope to help others that could have this type of ITP caused by a foreign organism. Please feel free to contact me for more detail. Good luck to all!!!

sunilleo profile image
sunilleo

As of now, no cure has been found. It's only condition management. Docs know it best as to which med will work besides steroids.

conquerator2 profile image
conquerator2

There's progress being made in general with regards to immunity related disorders. Even if it is not primarily to target ITP, research into lymphocytes is a part of it and those are the cells that trigger immune response for ailments such as ITP. I have faith that treatments that will make ITP even more manageable, and perhaps even curable, will be developed in the coming years.

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