Im concerned

[Mel000]

Today I went to drs my platelet count was 21 never been so low though after reading many ppl have had it as low as zero has somewhat made me feel a little better I have been referred to a specialist I recently had an untrasound on my spleen and it was twice the usual size would this be the reason for the low count

[rhezel]

My platelet count is 13 now, do not worry youll be fine,,

[Kyriak51]

When you say you were “referred to a specialist “ are you saying this is your first diagnosis of ITP? If so who made the diagnosis, primary physician. I was diagnosed by a hematologist in early 1990’s

Welcome to the group:

[Shoni89]

Twice the size on your spleen isn't normal and I don't think it'sqq itp related. My sons platelets have been as low as 9. But they jumped up to 279. I'm scared to get another blood test. I noticed bruises last week on his back but then he was sick again so I think they went back up. The hematologist always feels his spleen to ensure its not enlarged. I think it may be a sign of a more serious thing. Have you had a bone marrow test?

[NickyD]

Hi Lowest i have had is zero and i am still here and that was years ago. 21 is quite high for some people. Remember you can still function perfectly well with a count of 21, once you get your head around it. Take care. Nicky

[Rafiq]

Hello Mel000,

I was told by a haematologist that an enlarged spleen is not related to ITP. Please ask your haematologist or GP.

[BurntToast]

Your platelet count is fine so don't worry on that account. But as the others say it's not normal with ITP to have an enlarged spleen. By the way my count yesterday was zero.

[rhezel in reply to BurntToast]

Take care BurnToast,, hows your platelet now?

[BurntToast in reply to rhezel]

Yesterday, as in 2 days later my count was 7. I had had a couple of doses of pred while waiting for the romiplostim injection to kick in.

[rhezel in reply to BurntToast]

Thats good enough, just be careful., mine now is 4 but still doing fine,,

[Rikk68 in reply to BurntToast]

Don’t worry my platelets are5 I take no drugs just large doses of vitcplus plant sterols I e had it 24years I’m stable drugs are not the answer nor surgery