On the 24th April, in conjunction with The Haemophilia Society, the James Lind Alliance and a select group of health professionals, we launched a national appeal for patients with bleeding disorders to participate in a web based survey.
The survey asks for the submission of subjects they, the patients, consider important for research in relation to their specific condition.
The top ten questions will be submitted to the NIHR for their consideration for funding and subsequent research. Those not making the top ten, will then be considered for submission to pharmaceutical companies. Every submission is important.
This survey is open to all patients, carers, parents, clinicians and youngsters over the age of 8.
The bleeding disorders survey is now live but it will soon be closing.
SO IF YOU HAVE NOT TAKEN PART IN THE SURVEY YET, PLEASE DO SO ASAP....
To participate please log onto :
stopthebleeding.org.uk
Please submit what in your opinion needs research.
Any good consultants/haematologist in London? Please help :)
Making a complaint
Chronic itp. Latest treatment is rituximab
ITP: How Does It Feel?
