one month in and i am in a much better frame of mind than i was at the beginning, I generally feel much better than i have for a long time despite the Prednisolone (or who knows, perhaps because?) I was on 40mg for the first week, then up to 80mg for three weeks and i will be dropping to 60mg tomorrow, but the effects i read about are largely yet to appear, save for waking up somewhere between 3:30 and 6 every morning and some very minor incontinence which is now clearing up and was really just an irritation.
Unexpected effects include a huge desire to get things done (washing,cleaning) which is very out of character and i have become very bad at sitting still, with a lot more energy.
Having read all of the following books:
Gut and Psychology Syndrome
Intestinal Health: Breaking the viscous cycle
The Clever Guts Diet
Gut: the inside story of our body’s most under-rated organ
Super Juice Me
Which all pretty much say the same thing to varying degrees, I decided to put myself on a Specific Carbohydrate Diet (SCD), and specifically i am following the super juice me 28 day juice plan but i'm also having an SCD breakfast, lunch, and evening meal, in addition to it. This diet has been an absolute revelation for me so far, I feel great, have lost 6kg (I'm 6ft and was 84kg) so i'm going to keep going with it for a while yet.
Does it help the ITP though? well the jury is out on that and i guess will be for a long time. my counts have been 3,9,13,25 over the 4 weeks so it really isn't responding quickly (in fact i'm not sure the steroids are doing much at all given how slow it is) but as i've never had any spontaneous bleeding even at 3 i'm relaxed about it at the moment and we will see how it goes....
The real point of this thread is
1) to give people new to ITP a little hope that its not necessarily going to be that bad (i know its early days for me yet but the first 4 weeks hasn't been bad and the Steroids have not been bad to me yet)
2) to document what i'm doing with diet so if it helps or not there is some record of it