PETICHIAE

[nicoleeeeeeeeeeeee]

HELLO ALL!! DO YOU GUYS ALSO GET PETICHIAE'S ALL THE TIME? SEEMS LIKE IT'S NEVER LEAVING ME. OR IS THERE ANY OTHER WAY TO GET RID OF THESE?

[Julie115]

They never go away I have them all over

[Pollyangel]

I have a few left...

[Lin6]

I had 27 bruises all over my body to start with as my count was 7 when I found out I had ITP. Quite a few of them were very big but I'm happy to say after 2 years they have all finally faded away.

Fingers crossed yours will too.

Lin

[nicoleeeeeeeeeeeee in reply to Lin6]

wow that's great to hear. but can I ask what did you to raise your counts?

[Lin6 in reply to nicoleeeeeeeeeeeee]

I was put on prednisone 80mgs daily my count started to go up slowly over 6months in that time I was slowly taken off meds iv not taken any thing for over a year now, my count got up too 142 then lowered I'm at 98 now and very happy. I think that's the key don't stress, iv had pneumonia count dropped but has come back up again. I'm having bloods taken on 19th just to check all is well.

I do have very little bloods spots on shins but I'd rather that than all the bruises

Take care and just try and enjoy life.

Lin

[JasonJ]

Almost all mine left when my count went above 10, but I have some that have scarred my legs, leaving small brown dots on my ankles and a couple of larger marks on my shins. What's your count? Are they still red?

[nicoleeeeeeeeeeeee in reply to JasonJ]

my last count was 44 about three weeks ago. yes they're all red like they look like a map

[Itp1987]

I saw a dermatologist in the end, and some of my lingering ones are in fact a dermatological feature, not an ITP one! Campbell de Morgan spots. They are the spitting image of petechiae and despite me saying they start off like that with a low count, the dermatologist disputed it! I now have so many that sometimes I can't tell what's new and what isn't!

[Morgan]

I find they come and go

[cessie]

They are around! Don't let them scare you! After my initial diagnosis the doc made me promise at the first sign of red, I will rush back to hospital, which I did and the blood work reveals 300 ++ ( embarrassing! ) Na, don't fret about them!

[nicoleeeeeeeeeeeee in reply to cessie]

thank you!! what did you back then?

[cessie in reply to nicoleeeeeeeeeeeee]

Hi. I was put on a years treatment of prednisone, which started at 24 a day and gradually whined them down to the last one a day. And I was happy. Only the next day I woke up paralyzed with pain in all of my limbs. Thank God my sister helped me. I'm okay since but I do experience the pneumonia and the bouts of joint pain and the worry that there are no cure for ITP. But I gather from this site that we've got nothing to worry about. We've got people all over the world that shares our boat, and I really take comfort in this. Let's be strong. Don't remove your spleen and don't panic too soon... love always. Cessie.

[Pzena]

have it all the time. Had treatment with rixtinun and have a count of 150+, but still have it.

[ITPAffecty in reply to Pzena]

This is scary. So bruises doesn't go even with higher counts? Mine is below 20 always so I thought I have them always.!!

[Pzena]

the bruises have gone with higher counts.

[Anubis]

I was freaked out when these marks suddenly started appearing on my arms. got use to them coming and going. They don't look pretty but I put up with them,