Does predisolone cause long term insomnia even after discontinuition

[Avantidave1988]

3 months off steroid but sleep pattern is badly effected only few days 5 hours of sleep and most of the days just 3-4 hours. Before diagnosis I was hAving 8 hours of sound sleep..No idea when this would stop insomnia. .

[AnthonyHeard Administrator ITP Support Association]

It is difficult after steroid treatment for all the side effects to go away quickly. Another problem is that we are all different. One person may experience completely different side effects to someone else and the side effects may last longer for one person than another. In my experience I found that when I stopped taking steroids it took about 3 months for all the side effects to stop. It could be shorter time for some people and longer for others, sadly there is no definite time period with these things.

If problems persist do have a chat with your doctor/specialist.

But what I would say is that some of the other ITP treatments like Mycophenolate Mofetil (MMF) which I am now on, also cause insomnia.

[Avantidave1988 in reply to AnthonyHeard]

so do you use sleep aid..how many hours sleep you can still manage with this treatment

[AnthonyHeard Administrator ITP Support Association in reply to Avantidave1988]

I have recently discussed the insomnia situation with my specialist and he suggested that I take one of my 500mg doses of MMF just before I go to bed which means I get off to sleep quite well before it actually kicks in. The other 500 mg dose of my MMF I takeabout an hour before breakfast. So I have seen a definite improvement in my sleep patterns since doing this over the last 10 days or so.