Greetings from India to all the ITP supporters in this group ! This is Manish Sanghavi from Mumbai , India.
My wife recently got affected with TTP. Pls find below a brief background:
Brief background - My wife was pregnant 2 yrs back. She had developted Thyrod durring pregnancy and thyrod was normal after pregency. However, since last 45 days , she was feeling very weak. On 28th Jan 15 morning, she felt stiffness on her left hand and around her lips for 1 minute. Same day evening, she got similar feeling on her right hand and head. This was something like paralytic attack. We immediately rushed to our family doctor. He adviced blood tests. In the tests,we saw her hemoglobin was 5.80 and Platelete were around 30,000 only.
Our doctor informed us to consult a Hemotologist asap and we went to Dr M B Agarwal. The Doctor did the bone marrow test and informed us that she is affected by TTP and she will have to be admitted to hospital asap.
She compeleted 5 cycles of plasma exchange and 4 doses of reditux injections (by Doctor Reddy) and got discharged on 3rd Feb. However, she got a re-attack in 10 days after discharge from hospital. She underwent further 5 cycles of plasma exchange. The last plasma exchange was done on 28th Feb 2015.
Sweety is at home taking bedrest. She is having steriods on alternate days. Her platelets are in normal range currently (crossing figures).
Request your help in getting the following information :
1) Is the treatement for TTP and ITP is same ?
2) Pls advice on any alternate treatment possible for treating TTP / precautions to be taken etc.
It will be great to get contact details of any person who was by affected by TTP and is currently out of it. We can get suggession from such persons...to prevent a re-attack.
I can also do a concall / skype chat etc with you to discuss further, if required. In case of any further information required from my end , please feel free to write to me at firstname.lastname@example.org