iloprost for scleroderma
Have been on losartan with fluoxitine, omeprazole and azathioprine but am going in tomorrow for 5 days of iloprost....
Iloprost intravenous infusion
I am struggling with secondary Reynaud's ( undifferentiated connective tissue disease ) and my fingers/hands are swelling so badly during fla...
Iloprost infusion as an inpatient
I am due to go into a major London Hospital for five days of Iloprost infusion, eight hours a day....
I'm am going in for iloprost anyone had it before and did it help
Anyone else have Raynauds in their 30's
But I'm 33 and have got hit with severe Raynauds 9 months ago and no treatment is working. At the minute I'm on blood pressure tablets but no...
First day of iloprost
Well the first day of iloprost is over it went well, got the headache and pain in jaw, they slowed the infusion and although the pain didn't ...
RECENT HOSPITAL APPOINTMENT
I come away, having been informed I need to have an iloprost infusion ( my first ) , another lung function test, another heart scan and my Al...
Infusion for Raynaud's and Erythromelalgia?
Saw a vascular specialist for the first time yesterday. She confirmed that I have both of these conditions and calls is vessel wall instabili...
How do you manage your Digital Ulcers with Scleroderma or Raynaud's?
How do you manage your Digital Ulcers ( sores on your fingers and toes)? Our SRUK specialist, Prof....
Hi everybody, I have my first iloprost infusion tomorrow and for the rest of the week. Oh the joys of Ssc and Raynauds, it is certainly an in...
Lots of needles!!
Then at the end of October blood tests in advance of having 5 days of Iloprost the first week in November, so yes lots of needles!...
Diagnosed with Scleroderma for 7 years have iloprost on a monthly basis take amlodypine sildenafil pregablin ranatadine omeprazole and asprin...
Gangrene tip of index finger and thumb, any help PLEASE
Hi, just recently diagnosed with Limited Cutaneous Systemic Sclerosis, have been referred to the Royal Free. Have had a very negative few mon...
I am due to have Iloprost for the first time
Hi all I am due to have illoprost shortly. I have very bad raynauld which has lead to terrible ulcerated fingers....
DAY 3 ILOPROST
Hello everybody, day 3 finished. Managed to get to hour 4 before I got headache and upto 40ml an hour, took my paracetamol and continued on t...
Well, not sure how long it takes to work, but got to say, absolutely no difference after one week, hands still rubbish & toes not much better...
Struggling with sildenafil
Hi - I've been prescribed sildenafil to take alongside nifedipine for secondary Raynaud's ( I have scleroderma - LSSc - and Sjogren's syndrom...
Due to have iloprost infusion, daft question, but is the cannula left in place for the duration of treatment ( 6 days ), or is a new one each...
I have raynuards scleroderma copd and vascular disease rematolgy want me to go in for iloprost and my vascular surgeon said no anyone got ans...
Start a Community