I had 5 days of Iloprost infusion for the first time last week. How long is it before you usually start to feel the benefit?...
my husband has gone in for his yearly iloprost treatment he missed last year and has been in a lot of unbearable pain....
Looking for information and support system
I got diagnosed with diffuse cutaneous scleroderma in October 2017, I'm currently on cyclophosphamide and just finished a course of iloprost....
iloprost for scleroderma
Have been on losartan with fluoxitine, omeprazole and azathioprine but am going in tomorrow for 5 days of iloprost....
I am due to start Iloprost Treatment in 2 weeks time. I suffer from severe Primary Raynaud's....
Raynaud's, Looking for advice.
Went to see another specialist, I had been diagnosed with primary Rays about 3 years ago. The 1st specialist started to doubt his diagnosis a...
Torture treatment on the NHS!!
I was admitted for a 10 day course of Iloprost 6 hour daily infusions as an inpatient....
Hello everybody, I hope you are all as well as you can be. I have been busy this week, volunteering at our local community library on Monday ...
Experience of Iloprost infusion?
I got in contact with rheumatologist via his secretary and was advised the only side effects of Iloprost are headache and low BP, and there a...
Raynauds Pain control
I have primary Raynauds, with several attacks daily. My rheumatologist said he isnt sure if it is or not due to lack of success with treatmen...
Hello everybody, I hope you are all as well as you can be. A slightly less busy week, just as well because following my Iloprost I have been ...
I'm new here
Hello everyone, new on here and good to be in the company of folk with the same conditions, I’ve already read some very interesting stuff. I'...
Iloprost intravenous infusion
I am struggling with secondary Reynaud's ( undifferentiated connective tissue disease ) and my fingers/hands are swelling so badly during fla...
All new to me! Help!
I was referred to a specialist in September 2017 after experiencing some dodgy symptoms along with quite severe Raynaud's which I have had si...
Confusion after Iloprost confusion???
I completed a weeks Iloprost infusion on 16 February. This was my second admission, the first being last October....
Iloprost treatment - twitching side effect?
I underwent my Iloprost treatment and suffered from a severe headache and nausea....
Don't think my thermostat is working!!!
Hi all hope your all keeping well I cannot warm up today at all, I'm colder than when the temperature was in minus!! I'm never just comfortab...
The positive thread
With all the gloom of diagnosis and symptoms, I though it would be great to try and find some positive aspects in our new companions if at al...
Iloprost infusion as an inpatient
I am due to go into a major London Hospital for five days of Iloprost infusion, eight hours a day....
Hi People taking fluoxetine for Raynauds, I have scleroderma too, what time of day do you take it?
Ive tried iloprost and sindifal...
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