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Iloprost
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Posted by Loopy-loo
I suffer from Fibromyalgia,Rheumatoid Arthritus,Lupus & more recently Raynauds.I had a
Iloprost
Infusion but it hasent helped much.My Fingers and toes are mostly affected and I feel as if I could take my finger nails of as I get a really burning sensation ! Is this a symptom of Raynauds ? Help!!!.
I suffer from Fibromyalgia,Rheumatoid Arthritus,Lupus & more recently Raynauds.I had a
Iloprost
Infusion but it hasent helped much.My Fingers and toes are mostly affected and I feel as if I could take my finger nails of as I get a really burning sensation ! Is this a symptom of Raynauds ? Help!!!.
Loopy-loo
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Alot of people on this site seem to be infusing with iloprost. My rheumatologist has never mentioned iloprost. What symptoms does it treat?
cherylann
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
iloprost infusion
Going for
iloprost
infusion next week for five days i was wondering how much time, if any i would need to take off work. I do plumbing and heating and work with my hands. also do they treat you on the ward or do you get the luxury of a private room?
Going for
iloprost
infusion next week for five days i was wondering how much time, if any i would need to take off work. I do plumbing and heating and work with my hands. also do they treat you on the ward or do you get the luxury of a private room?
GavinMurphy
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
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Does anyone have diffuse scleroderma?
I'm on mycophenolate, nifedipine, ramipril and aspirin....so far....and
iloprost
(infusing as I speak!). Would be good to say hello to anyone in a similar position.
I'm on mycophenolate, nifedipine, ramipril and aspirin....so far....and
iloprost
(infusing as I speak!). Would be good to say hello to anyone in a similar position.
Roamer
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
iloprost infusion
Hi all, just got back from five days treatment of
iloprost
infusion, 5.1 mg 6 hours p/day and my raynauds is as bad as ever. my consultant told me to see if i notice any improvement over the next couple of weeks, i thought it would have been instant remedy.
Hi all, just got back from five days treatment of
iloprost
infusion, 5.1 mg 6 hours p/day and my raynauds is as bad as ever. my consultant told me to see if i notice any improvement over the next couple of weeks, i thought it would have been instant remedy.
GavinMurphy
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Anyone live in or around Buckinghamshire?
I have been having
iloprost
treatment for 6 years was annually but now every 4 months. I have a Port A Cath inplanted in my chest for access (thankful for) it keeps my finger ulcers at bay but my feet are annoying these days.
I have been having
iloprost
treatment for 6 years was annually but now every 4 months. I have a Port A Cath inplanted in my chest for access (thankful for) it keeps my finger ulcers at bay but my feet are annoying these days.
Jaime707
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Anyone in or around Buckinghamshire? I want to start or join a support group and am also on a fundraising mission.........
I have been having
iloprost
treatment for 6 years was annually but now every 4 months. I have a Port A Cath inplanted in my chest for access (thankful for) it keeps my finger ulcers at bay but my feet are annoying these days.
I have been having
iloprost
treatment for 6 years was annually but now every 4 months. I have a Port A Cath inplanted in my chest for access (thankful for) it keeps my finger ulcers at bay but my feet are annoying these days.
Jaime707
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
My first blog
I'm having
iloprost
this week, luckily its at a day unit so I get to come home.
I'm having
iloprost
this week, luckily its at a day unit so I get to come home.
Rp321
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Iloprost
On Monday I had my first
Iloprost
treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and swollen.
On Monday I had my first
Iloprost
treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and swollen.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Iloprost
On Monday I had my first
Iloprost
treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and swollen.
On Monday I had my first
Iloprost
treatment and within a couple of hours my joints started ache really badly and my hands and feet became painfully stiff and swollen.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
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