I’ve talked a bit about my icu experiences (hypothermia) but the thing I haven’t mentioned so far is that at the end of last year I received a diagnosis of Multiple Sclerosis, which I hadn’t even begun to get my head around before my memory goes blank and I woke in icu. It is not clear how the two are interacting. As both involve fatigue and muscle weakness, I expect the combination is probably bad news...
Has anyone any info on how MS affects the course of recovery from icu? Failing that, any hints on how to even begin to process what seems like a massive double whammy?
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Kit10
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I found myself in ICU after sepsis, multiple organ failure, severe ARDS, double pneumonia & avian flu - a two month coma, severe muscle loss & weakness and severely immune compromised, Muscle & joint pain & breathlessness.
I was diagnosed with a type of leukaemia whilst in ICU 2whose symptoms are very similar.
I concentrated at first on dealing with recovery from ICU and then started to deal with what was a treatable but incurable cancer sometime later. I had to get well enough to undergo treatment - chemo etc. I’m sorry I don’t know much about MS beyond that it can behave very differently in everyone - a heterogeneous disease.
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