Lupus: Can anyone tell me what lupus is and the... - ICUsteps

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Lupus

Natty1234
Natty1234
9 Replies

Can anyone tell me what lupus is and the symptoms pls

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Sepsur

This is what NHS says about lupus

nhs.uk/conditions/lupus/

Dr Google can throw up so many possibilities - has a medical professional suggested this?

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Natty1234
Natty1234
in reply to Sepsur

Thanks sepsur I’m really susceptible to bright lights always tired but still find it really hard to sleep will have a hour then wake went to bed at twelve last night but was awake again at 2 then every hour may of had 15 mins sleep on and off

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Sepsur
Sepsur
in reply to Natty1234

I really have struggled to sleep properly since ICU.

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Natty1234
Natty1234
in reply to Sepsur

I know the feeling m8 gp doesn’t understand tho been buying zopiclone on net but have a critical pain managment on the 12th maybe they can do something 😊

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KizzyD
KizzyD
in reply to Sepsur

I had trouble when they woke me from the coma. Now I feel sleepy early evening. But I still only sleep in chunks of 1-3 hours at a time.

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KizzyD

It is an auto immune disease where your body turns against itself. You can get a range of other complications and usually you will be put onto steroids. My mother was diagnosed in the 1980s. She is 72 and still going strong. M

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KizzyD

My friend has 2 children, both adults, with Lupus. Like my mum they are black Caribbean. But white people getLupus too.

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Bertieburt24

I have been checked for lupus as I have pain over my whole body . Turns out it’s seronegative arthritis. This can happen to people who have had sepsis. I think it’s a reminder to me that I was lucky to survive . Good luck

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KizzyD
KizzyD
in reply to Bertieburt24

Wow! I hope I don't develop that. I am at risk for Lupus but all my tests have been negative for it. I suffer with fibromyalgia and this affects my muscles badly. I had sepsis in ICU in September so I just hope I avoid the seronegative arthritis. I am prone to develop arthritis as well because I have a damaged pelvis and my hips are already painful.

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