Lupus: Can anyone tell me what lupus is and the... - ICUsteps

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Lupus

Natty1234 profile image
9 Replies

Can anyone tell me what lupus is and the symptoms pls

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Natty1234
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Sepsur profile image
Sepsur

This is what NHS says about lupus

nhs.uk/conditions/lupus/

Dr Google can throw up so many possibilities - has a medical professional suggested this?

Natty1234 profile image
Natty1234 in reply toSepsur

Thanks sepsur I’m really susceptible to bright lights always tired but still find it really hard to sleep will have a hour then wake went to bed at twelve last night but was awake again at 2 then every hour may of had 15 mins sleep on and off

Sepsur profile image
Sepsur in reply toNatty1234

I really have struggled to sleep properly since ICU.

Natty1234 profile image
Natty1234 in reply toSepsur

I know the feeling m8 gp doesn’t understand tho been buying zopiclone on net but have a critical pain managment on the 12th maybe they can do something 😊

KizzyD profile image
KizzyD in reply toSepsur

I had trouble when they woke me from the coma. Now I feel sleepy early evening. But I still only sleep in chunks of 1-3 hours at a time.

KizzyD profile image
KizzyD

It is an auto immune disease where your body turns against itself. You can get a range of other complications and usually you will be put onto steroids. My mother was diagnosed in the 1980s. She is 72 and still going strong. M

KizzyD profile image
KizzyD

My friend has 2 children, both adults, with Lupus. Like my mum they are black Caribbean. But white people getLupus too.

Bertieburt24 profile image
Bertieburt24

I have been checked for lupus as I have pain over my whole body . Turns out it’s seronegative arthritis. This can happen to people who have had sepsis. I think it’s a reminder to me that I was lucky to survive . Good luck

KizzyD profile image
KizzyD in reply toBertieburt24

Wow! I hope I don't develop that. I am at risk for Lupus but all my tests have been negative for it. I suffer with fibromyalgia and this affects my muscles badly. I had sepsis in ICU in September so I just hope I avoid the seronegative arthritis. I am prone to develop arthritis as well because I have a damaged pelvis and my hips are already painful.

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