Nerve conduction tests?: Recently... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Nerve conduction tests?

traceylou profile image
7 Replies

Recently underwent nerve conduction tests on my right arm only, even though I did say it was my arms feet and legs and hands. Was told now that it is not nerves but vascular, do not believe a word, nor understand should I ask for more results and a copy of the results??? Anyone had the same?

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traceylou profile image
traceylou
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7 Replies
Skyllark profile image
Skyllark

ask - does not hurt to ask - doc's should always explain things to you - even ask for a second opinion

traceylou profile image
traceylou

The problem I have is, it does hurt to ask?? I always am left to feel that one should not really ask and patients do not normally ask-or so I am told. Just asked for my detailed report for bloods and Lumbar it was not received well.. what do you do? I feel that I am wasting their time and am told they are very busy by their secretaries....many thanks for your reply Tx

daisyd profile image
daisyd

Hi I was surprised when my nerve conduction studies came back normal. I was sure it must have been a problem as I had been having problems with opening packets, buttons and my feet felt numb.

I have have now accepted that Hughes syndrome , can ? be to blame for a lot of things.

But if you feel you want an explanation, you are I think entitled to a copy of the Gp's letter that was sent by the Hospital to your Gp.and then perhaps go from there, your Gp should be able to explain things to you

I always ask the surgery for a copy I have not yet been refused

Karen xx

Karen xx

Sadieagogo profile image
Sadieagogo

I absolutely think you should have the right to recieve your report. If they won't give it to you maybe the can send it to your GP and they can share it with you.

norris profile image
norris

I had nerve conduction tests last week, arms and legs. I have a trapped nerve in my elbow. But all the other symptoms on my hands a feet came up as normal. I think hughes is very strange. I have had problems with my hands and feet for 50 years and always the tests come up normal. I also know I have had Hughes for that 50 years. I now have a strange noise in my head, as if I am standing under an electric pylon. I don't think the technician was wrong, I think its the nature of this problem. Its certainly not fully understood.

3boys profile image
3boys

I had it done, and I have a copy. I hoe you find some answers.

olleberj profile image
olleberj

I also had nerve tests done before I was diagnosed with APS. My nerve tests were normal in spite of the fact that I had persistent numbness and tingling in my hand/arm and lower extremities. I think that APS sometimes causes symptoms that are similar to those caused by nerve problems, but they are not specifically caused by problems with the nerves but rather problems with the veins, arteries, and/or brain resulting from APS.

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