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Hughes Syndrome APS Forum

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flying and scuba have M.S., proteins, dvt and hughs synrome, need to find travel insurance life is for living thats what I intend too do.

miley profile image
8 Replies

any help will be appreciated,I learnt to scuba whilst in my wheelchair which only comes out occasionally had to fight neuro to get a letter to allow me now advance specialised shark diver 150 dives have not let my health win yet

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miley profile image
miley
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8 Replies
MaryF profile image
MaryFAdministrator

Hello, there, you tell an inspiration tale, like lots of people on here; This is a great with great peer support, and also a wealth of information, available via The Hughes Syndrome Foundation. There are lots of real experts on this condition on here, who have literally been to the University of Life with it. Let us know what we can do to help. MaryF x

miley profile image
miley

I always try to be positive when I got the results on friday, my husband and I started to talk with our diving buddies and decided december 26TH we are off to my second home which for me is being with all the wonder of life under the sea, just need to get travel insurance and we will book whale sharks for christmas, second home give me back my spirit to fight.

first home is family, hubby children pets and friend and if I CAN EVER HELP SOMEONE I WILL ALWAYS TRY.

GinaD profile image
GinaD

Congrats! Wish I had some info or you, but I wanted to take the opportunity to say : right on! Yes, you should have a mind for your healh, but life is for living!

Gina

Squeezer profile image
Squeezer

Hello there,

I've just been trying to get reasonable travel insurance cover and finally went with a company called goodtogo. In their breakdown of whay they cover, they do list activities such as scuba diving and skydiving etc as being covered with the right premium so they might well be worth a try.

Good luck!

Helen.

Leigha profile image
Leigha

Hi Miley,

Way to go! I sort of answered this not long ago. Owned a travel agency and was certified to sell travel insurance, but this is in the States. Start calling reputable insurance companies, and I mean reputable. There are those out there who will say anything to get your money, unfortunately. Talk to a live agent and ask direct questions, i.e. pre-existing. There are those that do and those that don't. With the company I covered it usually was if there had been a recent flare up or problem which determined if the coverage would hold for pre-existing, but I am going back a number of years.

I am also a PADI scuba diver and say a huge hooray to you. Haven't been able to do it in too long, but, like you, I keep that word 'ABLE' in caps and the 'dis' I do everything to dismiss!

Good luck, you bring back good memories.....

olleberj profile image
olleberj

I use Travel Guard...they have various levels of coverage and the prices vary by what you select.

miley profile image
miley

thankyou everyone for all your surport, nice to talk to people who understand it really helps. Thankyou . live life to the max xxxxxxxxxxxxxxxxxxx

miley profile image
miley

Booked flights...we are going to Maldives in december/Jan....scuba diving. One upside..have persuaded hubby to buy posh seats on the plane so i can lie flat. Also long stop over in Middle East on the way....should be luxurious.

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