Leg discomfort

[Hilariew930]

For awhile (several monhs) I've had constant leg achiness/ discomfort in both legs from knee to ankle, but getting more constant. Its not hot, swollen, etc. Does anyone else have this? Could it be APS related or something new? I'm still new to all of this in general.....

[tassie]

Miscellaneous pains are common in apls but its hard to say if its apls or not, best to rule out everything else then if they can't find another explanation it probably is.

[Moonbug]

Hay hope you are ok thanks for your posts they have calmed my nerves somewhat. You say about this leg achy thing I to get this but only in my ankle I can really feel it when I wake in the morning so don't know if my circulation is not good. By any chance do you know averagely what your blood preasure is mine is always quite low being 102/60 just wondered if this could be the reason maybe not getting enough circulation. Hx

[GinaD]

My suggestion? Experiment. (you probably already have) Try propping your feet up on a wedge, maybe put a hot pad by your feet, don't wear tight waist band PJs to bed, stretch before you get up, etc. In the months preceeding and following my diagnosis I had this weird semi-numb feeling at the back of my head when I woke up. I have since observed that this numb feeling is relieved with just the right pillow, but if it returns despite using the right pillow, this means my INR is too thick. Now my hematologist thinks this is crazy. Absolutely crazy, and he urges me to disregard the bizarre head numbness in the morning. But . . . . I'm sure I'm right. When my head is numb in the morning, either my INR is low or I've used the wrong pillow. ( I've become one of those weird elderly women who, when possible, travels with her own special pillow.) Good luck.

[viv112]

I get knee length support stockings on prescription and I wear them every day and they help alot and prevent the achiness in my legs. Also I have trouble with my left foot and ankle and had plantar fasciitis a couple of years ago. I wear an orthotic insert in my shoe to raise my instep so that my foot doesn’t pronate or roll over inwards because this makes my ankle really ache. Flat shoes are the worst for ankle support so its best to wear good trainers or shoes with a bit more support. Hope this helps.

[haley]

Keeping my legs warm even when I don't think they are cold helps. I often wear leg warmers. Sometimes a heating pad at night also feels good on my calves. I was diagnosed with APS last year when antibodies were found. I have not had clots and coagulation tests are normal. I now have a diagnosis of myelitis which fits all of my symptoms. My legs that may feel weak, cold, achy, tingling, fatigues, numb or burning at any time. Moving is good. Sitting at length is not good nor is too much strenuous activity. I do yoga several times a week as well as biking which uses my quads more than my legs. Good luck to you.

[Debs18]

Hi, I've had APS now for 11 years and my major complaint for the majority of the years have been achy and painful legs. My doctor has given me painkillers which do help, but it does get me down every now and then. I hope you find this site helpful as I seem to get more information from here than I do from the doctors.