INR too low

[APSGirl22]

Hi everyone

Just a quick question does anyone experience heightened anxiety and panic from time to time when their INR is out of range?

[daisyd]

Yes and more depressed that’s when I know I should self text and 95% of the time I am right

[Raw57]

I do and I am. I had Omicron the end of June into July. Since then I’mAll over the place. My hematologist dropped me as a patient since I’m in France for the summer so now I’m relying on a GP that is a family friend. It would be impossible to find a hematologist in France in August.

But in the meantime I too high, I lowered my dosage and I’m a tad higher. But I was too low 2 weeks ago.

I’m going to be tested 2 x a week until I leave September 20th. Hopefully by then I’ll be stable. I hope you find a stable dosage and INR soon😊

[Fra22-57]

I do and I can’t rely on INR nurses as always told to then drop 2 days of warfarin when I know that will be too much and I protest but relent.Next check and it’s shot way way below so dose is upped gradually.When it is too high you can lower dose and eat vitamin k products aswell as lower dose gradually.Hope it’s back in range soon

[Lure2]

Yes of course we need to have a steady INR to feel ok with our "sticky blood". As Fra says the nurses and other people do not understand that it can be very difficult to monitor our INR.

I should be at around 4.0 to avoid symtoms and clots etc from my APS but I am very lucky to self monitor my INR at home very often with a machine that suits my needs to get a correct result and feel ok.

If I change my dose I do it only with 1/4 of a tablet (2,5 mg here in Sweden) or if I have forgotten to take the evening dose (very seldom as I have alarm om my mobile at 9 o clock) I take 3 tablets the next evening.

OBS that we are all individuals with different symptoms and needs so therefor it is important that we try ourselves if we are so lucky to selftest to find out how we can go back to normal as soon as possible. I only tell you how I do it but I know that the nurses at the hospital do not understand how we react on Warfarin with our sticky blood and sometimes Lupus Anticoagulant.

When I am too low I feel awful. My memory is awful. May even fall to the ground, dizziness etc etc. Depends on if we have neurological symptoms or not.

It was long time ago since I now had very bad symptoms as I have a very good control of my INR myself. I write everything down and get a copy to my Hematologist from time to time so she knows what I do.

[MaryF Administrator]

I have never had to 'do an INR' so not something I have experienced but I have heard many times over on here and other forums of people feeling a bit wretched when it is too low, so I am sure many can related to this, I hope you can see your GP or message your consultant if this is becoming a regular problem. MaryF

[APSGirl22 in reply to MaryF]

Thank you Mary. I hope you are well

[MaryF Administrator in reply to APSGirl22]

Thanks. MaryF