Kay Thackray's new book regarding Sticky Blood

[MaryF]

Her new book will be available via our charity website soon, and in the meantime if you do go looking for it on line, make sure you look for the most recent version. MaryF

[Ash0507]

Where can I find your charity website as would read the book?

[MaryF Administrator in reply to Ash0507]

ghic.world/ at the moment it is not available for some reason on Amazon in the UK, and we have not got it on the website yet, however will do soon, in the mean time it is available from the Arima publishing. MaryF

[Ash0507 in reply to MaryF]

I've bought her 1st book from Amazon.

Cam I ask does aps cause numbness I'm getting it in my legs and toes not my back, I do have arthritis but that's never effected it. I have a patch on my thigh with pins and needles in the rest of the leg with partial numbness in my toes.

I can't focus of writing any more not my main eye sight as hasn't changed. I have to shut one eye to focus on numbers in a row or letters.

I would appreciate your advise

[MaryF Administrator in reply to Ash0507]

You need a full assessment by a consultant who fully understands Hughes Syndrome/APS who will look for any reasons that your circulation is poor. Also checking your levels of D, B12, Iron and your Thyroid. A doctor with only half the knowledge or indeed none at all may miss things. MaryF

[Lure2 in reply to Ash0507]

Hi,

As MaryF says you have to look for a Specialist who understands autoimmun illnesses and especially APS.

As i have understood you are on Warfarin and in that case i guess you have got a Diagnose by someone who knows you have sticky blood that has to be thinned.

Some GPs or others can give Warfarin but do not understand that we usually need a rather high INR and that it is also stable.

I also could not see on one eye from times to time before I was properly anticoagulated.

In her book (the old one no 1) Kay Thackray describes eye-issues I know. You must do something about this as soon as possible. Yes, APS gives numbness if the INR is too low. I am not a Doctor but you have to find an knowledable APS-Specialist.

[Ash0507 in reply to Lure2]

I'm being refered to London 🙏🤞 I look forward to reading her 1st book to get some insight into it

[Lure2 in reply to Ash0507]

Be sure that this Doctor knows APS very well. We say this all the time, as we know from own experience, that we need an experienced man or woman. Try to read Kay Thackrays first book (you said you already had the first one) before you see the Doctor, that is my suggestion.

Good Luck!

Kerstin

[Ash0507 in reply to Lure2]

Thank you just ordered it and will read it before the doctor if they have managed to find her

[Lure2 in reply to Ash0507]

If it was me I would call the clinic and ask for the name of a Specialist of autoimmun illnesses, especially APS. Then doublechek with the GP if he has referred to hen.

This is so very important that it will be the right Doctor.

[Ash0507 in reply to Lure2]

I found her on the internet which is the same one which was mentioned on here, I'm calling my gp tomorrow to find out if they have found her if not I will do as you said