Inr still not going up 😐: Should I... - Hughes Syndrome A...

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Inr still not going up 😐

Tim_Thorpe profile image
Tim_Thorpe
β€’7 Replies

Should I take injection tonight ?

Called on call register at st Thomas last night wasn't a very nice man wasn't help full told me I was testing to often and not to bother to take injection spoke to a very nice Irish lady last Tuesday who was completely opposite very nice concerned and more then helpful. Wanted to call for some advice tonight but didn't want to get through to the male doctor.

Will call the Anticoagulation clinic or may be prof hunt Secatary for some advice .should I take injection tonight ? Have had amourus fugax when my inr been 2.8 plus now have micro clots on brain due to warfrin not working have been but on aziophrine max dose now 150 mg daily

Suffered a major stroke 2011 so don't under stand doctor telling not to bother to take injection

Bit confusing 😳

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Tim_Thorpe
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Manofmendip profile image
Manofmendip

Tim

I agree with my colleague APsnotFab.

Dave

panda60 profile image
panda60

Who is monitoring your anticoagulation? I was put on it when a patient at St Thomas' in 2008, but since then have been under the care of the anticoagulation clinic at my local surgery, or hospital if having surgery.

I have a clear plan in place

My yellow anticoagulant record book has all my details, my INR range and where to call for advice if I need it.

I record my results and any changes (except minor ones) are on their system.

I am given a date on which to phone with my results and told what dosage to take. But if I am out of range then I phone for advice. I always test in the morning so easier to speak to someone.

I test once a week - only more often if asked to because unwell or trying new medication. Or if I am holiday and eating different food (I don't drink)

Every six months I have my machine reading checked against the clinic one and if the readings are out by over a certain amount it would have to be sent away for recallibrating.

Finally I was told by my GP and the clinic that it takes three days for a different dosage to show, so no point testing each day.

You really need to get yourself sorted out soon.

Wittycjt profile image
Wittycjt

Kelly, Are you maintaining your normal amount of vit k intake when you are injecting. Because if you inject and then continue to eat high vit k level your INR will not adjust properly. The fragmin works on different area of the clotting cascade, not vit k. This may be why you feel so well when you measured at 2.7... does this make sense? It's my understanding the fragmin is just there to keep you safe from clotting, not to address your vit k-INR, for they do not work the same .

Yllek profile image
Yllek in reply to Wittycjt

Hi

Yes I'm doing everything as I still should on warfarin and keeping my diet the same. I'm aware they don't work the same. The fragmin must be doing something for me to be well when my inr is low so that's very reassuring isnt it x

Wittycjt profile image
Wittycjt

Tim can your doctor switch you to just the fragmin as a daily dose? And stop the warfarin altogether- might be worth looking into. Check with your Dr, good luck, stay clot free!

Yllek profile image
Yllek

How are you - are you back in range and did you get injections dosage sorted?

I've dropped again to 2.5 so still taking fragmin. I usually take 5.5 and I'm up to 7 - hope mine starts playing nicely soon as well!

Make sure you get a firm plan in place for next time as well x

Tim_Thorpe profile image
Tim_Thorpe in reply to Yllek

3.5 yesterday told me to take 11mg then 12 alternative days 😊

Seems to be working but will see went up to 3.4?the other day then crashed done the nxt to 2.6 will have to wait and see what happens over bank holiday πŸ‘€

Have a nice w

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