Support groups?

Are there any support groups in Tyne and Wear, north east of England, that I can go to?

[MaryF Administrator]

I am intending to start one in the East of England, and I am sure more will follow, as Lynn says it is the turning up etc, however with event planners on line now, including Facebook, it is easier to see numbers. I shall be starting one in my home town. I have lost count of the times we have been asked, and across the country members on here are keen to get started, however mine is out of your area, and will probably start in March or April.

I am sure as a result of your post, others in your area will let you know they are not far away, I have met one or two locally to me. MaryF

[Manofmendip]

Sadly our APS South West Group, which met in Bath, folded from lack of interest.

Dave

[Hidden in reply to Manofmendip]

Oh no

[Lure2]

As I suggested a couple of days ago was that you could put a question here about Lupus and APS. Tell a bit about yourself and your symptoms and Specialists you have got and drugs you have got so far.

You will reach a lot of members that way who can suggest a Doctor who has good knowledge of autoimmun illnesses like APS and Lupus, if you do not have one yet.

A diagnose is important and then to get a Specialist who knows a lot of autoimmun illnesses who can give you the best treatment.

There are very few really good Doctors so you must look for that one who knows. APS is a rare illness and rather young that is why there are very few Specialists. This site will give you a good knowledge of APS I hope. Knowledge is power!

Kerstin in Stockholm

[dawnzy]

I live in the Tyne and wear area, and think this is a great idea, I may know of a venue that I may be able to get free access to but I would need to have discussions.but if there is one already even better

must say this site has been my salvation, the administrators are amazing people. But still a realy good idea, even if its meeting in a coffe shop for a chat I'm sure it cant be a bad thing

[Hidden in reply to dawnzy]

Aaaw fantastic!!!!! Let me know if you sort anything. I work Sundays , but generally I'm free on Saturdays

[Hidden in reply to Hidden]

There's a group for lupus uk on 4 times a year at Ramside hall hotel in Durham, but that costs me £80 in taxis, so not really viable. It was great to have cuppa and listen to others and gain knowledge of living with lupus, and now I have APS,