Hi all, does anyone suffer from sensitivity to light ? I've had to change all my lightbulbs and uplighters so i don't have to look at the lights. I bought a £40 light display last christmas (LED lights) )and i've given them away. This has only started over the last 2 years. I have sun sensitivity in summer but i did'nt think this would affect me in the house. Thanks Elfie
Photophobia?: Hi all, does anyone... - Hughes Syndrome -...
Hi Apsnotfab. Yes I have I now have a diagnosis of undifferentiated connective tissue disease as well as APS. When I was in hospital it was very uncomfortable as you can imagine with all those horrendous fluorescent lights . Do you think I need to see an ophthalmologist because of the hydroxychloroquine ?I wondered whether this is part of APS.because when I have a migraine I can't tolerate any light at all .ps. I had my eyes tested recently and everything was fine . Thanks Elfie
Yes I have a problem with lights too, I even have to wear sunglasses driving just for normal daylight not even when it's sunny. When I sleep I wear a black eye mask because even the tiniest bit of light gives me a headache even when my eyes are shut! Very strange!
I just want to shut my eyes when the lights are on. Nobody has ever said why I get this, they only say about being light sensitive causing a flare but this isn't what I get.
I wonder if you stay high enough in INR? Also as you selftest (I do not know if you are Lupus Anticoagulant), have you doubletested with the lab in the vein a couple of times. For me I get a higher (0,6 - 0,8 in INR) reading than in the vein. The vein-result is the one that counts.
Best wishes from Kerstin in Stockholm
My INR is 3-4 and I'm in range. I've had issues with lights etc for 4 years when all my symptoms began. I had a venous test done when I initially started self testing and it gets checked at each Rheumy appt every 6 months. In my case i don't believe it is linked to INR as I experience it whether my Inr is in range or not.