Just been diagnosed with Aps - Hughes Syndrome -...

Hughes Syndrome - APS Support
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Just been diagnosed with Aps

Sally27
Sally27

Hello my name is Sally. And have just this week been diagnosed with Aps because of recurrent miscarriage. Ten of them. Just so scared and finding it hard to take in.

8 Replies
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MaryF
MaryFAdministrator

Hello and a big welcome to you, sorry to hear about your losses, this is not uncommon, and you have landed in the right place to help this situation. Firstly where are you located? This will enable us to help you more efficiently. Diagnosis is the first step and the right consultant is the next one. Please try not to worry, it is safer to be diagnosed and usually gets to the bottom of many problems. MaryF

Sally27
Sally27 in reply to MaryF

Thank you Mary. I am based in sittingbourne kent uk. And yes I agree it's better to know. Just been stressing myself out a bit. Sally

MaryF
MaryFAdministrator in reply to Sally27

Ok here are the consultants in the South East you need a referral to one of them:

NHS Specialists

Professor KevinDavies

Consultant Rheumatologist

Department of Rheumatology

Royal Sussex County Hospital

Eastern Road, Brighton

East SussexBN2 5BE

Telephone: 01273 696955

Dr Christopher Edwards

Consultant Rheumatologist

Department of Rheumatology

University Hospitals Southampton NHS Trust

Tremona Road, Southampton

Hampshire SO16 6YD

Telephone: 02380 798723

DrGillianEvans

Consultant Haematologist

East Kent Haemophilia Centre

Kent and Canterbury Hospital

Ethelbert Road, Canterbury

KentCT1 3NG

Telephone: 01227 783157

Dr Yousuf Karim

Consultant Immunologist

Department of Immunology

Frimley Park Hospital

Portsmouth Road, Frimley

SurreyGU16 7UJ

Telephone: 01276 604604

Dr David Keeling

Consultant Haematologist

Department of Haematology

The Churchill Hospital

Old Road, Headington

Oxford OX3 7LE

Telephone: 01865 225318

DrDenisede Lord

Consultant Rheumatologist

Department of Rheumatology

Kent and Canterbury Hospital

Ethelbert Road, Canterbury

KentCT1 3NG

Telephone: 01227 766877

DrDenisede Lord

Consultant Rheumatologist

Department of Rheumatology

Victoria Hospital

London Road,Deal

KentCT14 9UA

Telephone: 01304 865406

DrDenisede Lord

Consultant Rheumatologist

Department of Rheumatology

Queen Elizabeth the Queen Mother Hospital

St Peters Road, Margate

KentCT9 4AN

Telephone: 01843 225544

Dr Sam Pantakalam

Consultant Rheumatologist

Department of Rheumatology

Eastbourne Hospital

Kings Drive, Eastbourne

East Sussex BN21 2UD

Telephone: 01323 417400

Dr Sue Pavord

Consultant Haematologist

Department of Haematology

The Churchill Hospital

Old Road, Headington

Oxford OX3 7LE

Telephone: 01865 225318

DrAnnScott-Russell

Consultant Rheumatologist

Department of Rheumatology

William Harvey Hospital

Kennington Road,Willesborough

Ashford,KentTN24 0LZ

Telephone: 01233 616267

DrAnnScott-Russell

Consultant Rheumatologist

Department of Rheumatology

Royal Victoria Hospital

Radnor Park Avenue, Folkestone

KentCT19 5BN

Telephone: 01303 850202

DrAnnScott-Russell

Consultant Rheumatologist

Department of Rheumatology

Buckland Hospital

Coombe Valley Road, Dover

Kent, CT17 0HD

Telephone: 01304 201624

Dr Hassan Shehata

Consultant Obstetrician

St Helier Hospital

Wrythe Lane, Carshalton

Surrey, SM5 1AA

Telephone: 020 8296 2542

DrRobinWithrington

Consultant Rheumatologist

Department of Rheumatology

William Harvey Hospital

Kennington Road,Willesborough

Ashford,KentTN24 0LZ

Telephone: 01233 616221

DrRobinWithrington

Consultant Rheumatologist

Department of Rheumatology

Kent and Canterbury Hospital

Ethelbert Road, Canterbury

KentCT1 3NG

Telephone: 01227 864233

Dr Sarah Woodham

Consultant Rheumatologist

Department of Rheumatology

Hillingdon Hospital

Pield Heath Road, Uxbridge

Middlesex UX8 3NN

Telephone: 01895 279682

Make sure your levels of D, B12, Iron and your Thyroid are checked also! Feel free to ask questions, many on this forum have been in your position. MaryF

Sally27
Sally27 in reply to MaryF

Thank you so much mary. I forgot to mention I also suffer with under active thyroid but it is well controlled at the moment. Sally

Hi I'm so sorry to hear of your losses very difficult for u.

I know it must be upsetting and worrying being diagnosed with aps but it might actually be a good thing as with the right treatment now they know could make all the difference.

People do have healthy pregnancys with the right treatments so try not to worry too much about the new diagnosis.

I have aps and am always on aspirin but during pregnancy this can change to heparin injections daily too.

I really hope that u get to see someone and have the right treatment and success in the future X

Ten! So sorry for your loss. Hopefully now you know the problem, with the right treatment, can move forward for a successful outcome. Take care.

Hello! Just recently diagnosed with APS as well after 5 miscarriages and 1 20 week loss. I understand the treatment is daily injections and aspirin. Has anyone had successful pregnancies after being diagnosed with this and taking the medications? help!

Than you all for the support much needed. My consultant for my recurrent miscarriages and tho one that has diangnsed aps. Says I need to have aspirin and fragmin injections as soon as I fall pregnant again. Also cyclogest. And also prescribed hydroxycloriquine for natural killer cells. I'm just trying to take it all in. I wish you all the success Lisa. And thanks again to suntapliz5038 Sara and Mary for your replies xx

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