If I don't have Hughes/lupus, would a... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,356 members10,544 posts

If I don't have Hughes/lupus, would a Hughes/lupus specialist still look into other possibilities, e.g. mixed connective tissue disease?

Spicer21 profile image
8 Replies

Hi,

If I don't have Hughes/lupus, would a Hughes/lupus specialist still look into other possibilities, e.g. mixed connective tissue disease (of which I also have some symptoms) and be willing to diagnose?

Thanks in advance.

Written by
Spicer21 profile image
Spicer21
To view profiles and participate in discussions please or .
Read more about...
8 Replies
MaryF profile image
MaryFAdministrator

In particular a Rheumatologist would do so. MaryF

Spicer21 profile image
Spicer21 in reply to MaryF

A rheumatologist rather than an immunologist, Mary?

MaryF profile image
MaryFAdministrator in reply to Spicer21

I have never seen an immunologist, and all of my professors and consultants are off the recommended list, plus my Haematologist. MaryF

Spicer21 profile image
Spicer21 in reply to MaryF

Ah, ok. It was just that the specialist on the Hughes S. charity list who's nearest to me happens to be a immunologist, which is why I asked. I'll try and do some research into what his particular interests are; they'll obviously include Hughes, but his bio might detail more.

MaryF profile image
MaryFAdministrator in reply to Spicer21

If they are on the recommended list they will be fine. MaryF

Spicer21 profile image
Spicer21 in reply to MaryF

Thanks, Mary.

Spicer21 profile image
Spicer21

Thanks APsnotFab. I'll have to do some research into who might be best to see. If you have any ideas, I'd be really grateful if you could pm me again. Do you think that the specialists that you have already recommended to me would good to see even if I don't have Hughes/lupus? Sorry, to be a pain and be picking your brains yet again, only I've had a good think about my symptoms and I think they could fit MCTD more than Hughes/lupus and I don't want to make a mistake when I'm having to go privately and pay.

I was diagnosed with APS and later with Unspecified Mixed Connective Tissue Disorder by a Rheumatologist.....Autoimmune Disorders are systemic...and if we suffer from one AD high probability another one could show up.....

You may also like...

Does having Factor V Leiden and Lupus Anticoagulant mean I have Hughes Syndrome?

alone mean i have Hughes. Is hughes just a generalization for any antiphospholid disorder? Also he...

Happy Birthday Graham Hughes

Professor Hughes is 77 today, 26th November 🎈🎁🎈🍰. Happy birthday Graham Hughes, hope you have a...

Positive Test Results

to one test and not the others. Surely you have APS or you don't? I was Lupus anticoagulant...

Do confirmatory tests have to be positive for Hughes Syndrome?

all the classic symptoms and have had multiple DVT's. One doctor says I have hughes Syndrome and...

Is there a link between lupus & hughes

that have lupus have Hughes ? Been diagnosed with lupus for 8 years just found out about the Hughes...