I need some advice on what type of doctor I am looking for

[becca10]

I have been looking at lists of doctors on the site APS Foundation of America, and have found several that are fairly close to my home, within 3 or 4 hours which I am willing to drive. but the ones they have listed or either Hematologist or Rheumatologist. I don't know which one I should be looking at. I have been to both, I have seen the Rheumatologist since I have been diagnosed with Fibro. Any suggestions which I see be seeing for the APS dignosis I received?

[MaryF Administrator]

Hi, I don't know about the organization you mention only the link I gave you previously, I would be tempted to get in touch with one of them off the list to find out who they suggest nearer to you: apsaction.org/

You also when you do see somebody need to be firm about your inadequately treated Thyroid, probably masquerading under 'Fibro' umbrella and also make sure your levels of B12, D and iron are looked at. Other members of course may have actual suggestions in your area. MaryF

[becca10 in reply to MaryF]

Actually, I found the organization through the site you gave me. I will be very firm with who ever I do eventually see about the Thyroid, B12 , D and iron are looked at very closely. I will certainly keep you up to date as to what happens with this.

Becky

[MaryF Administrator in reply to becca10]

Good, and also remember that in the USA it may be possible to request a trial of natural desiccated thyroid, if your current medication is not up to the job, as the Synthetic is normally only T4 and most of us need a mixture. Keep well, and let us know how you get on. You may find others on here have been successful about this.....let me know if you get stuck and I may be able to find some USA Thyroid contacts for you. MaryF

[becca10]

I certainly will keep you all informed as to how my search is going and if I get stuck I will also let you know. You have all been so great in helping me so far. I feel like I really know you all personally and the support I have gotten from everyone has really made me feel so welcome to the group. I can not tell you how much I appreciate it all.

I have written down the information on the natural desiccated thyroid to discuss with my doctor when I go to see her either this week or next week when I can get an appointment with her.

Thank you again MaryF for being such a huge help for me!!

Becky

[Hidden]

There are APS specialists listed at the following sites; hope this is helpful.

APS Action

apsaction.org/

Stop the Clot

stoptheclot.org/learn_more/...

APS Awareness USA

apsawareness.com/

[becca10]

I have looked at the site apsaction.org/ many times and have contacted a few of the doctors listed. Some have contacted me back and some have not. The ones I am really interested in, are really too far away from where I live of course.