A very sad story, and a clear picture

[MaryF]

dailymail.co.uk/health/arti...

MaryF

[Manofmendip]

Tragic Mary

Is there any way of getting a message to this poor woman to insist that she is tested for APS? Do you have any contacts, these days, at the Daily Mail?

Dave

[MaryF Administrator in reply to Manofmendip]

I have already done so, MaryFx

[Manofmendip in reply to MaryF]

Good.

Dave xx

[daisyd]

Well done Mary, thank you xx

[brianfairchild]

It scares me the amount of people I meet through my wife's stroke rehab groups who have the symptoms of APS yet tell me they have never been tested

[MaryF Administrator in reply to brianfairchild]

Yes there needs to be far more awareness spread! MaryF

[Lure2 in reply to MaryF]

Yes, this is a nightmare. My APS-doctor here in Stockholm also says that APS it too underdiagnosed and not known enough by the public and doctors.

Thank you Mary!

Kerstin

[MaryF Administrator in reply to Lure2]

I hope things improve. MaryFx

[Suzypawz]

Even though we try our best to get the awareness out there, it still is very slow & often ignored.....sad well done Mary for contacting her x

[salva76]

That the reason i created a foundation here in spain. We must to show the society our illness, from patients to doctors. Here in spain by the crisis, if you go to your gps and ask him for aps test , they say what is tgat. It is not necessary, if you get huges syndrome you would have a clot o embolism pulmonary....do you think this is an answer..? We have to fight togetger from Uk to rest of tbe world. In spain we are many people with aps...mexico .colombia.argintine...we must move together to try to show the illness and push new treatments , to improve our quality of live.

Best regards

Salva

SAF ESPAÑA.

[Lure2 in reply to salva76]

Well said indeed!!

Kerstin in Stockholm