Your solution needed please. - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,443 members10,641 posts

Your solution needed please.

Kathy829 profile image
10 Replies

Would anyone share their home remedy or prescription/OTC that really helped get rid of or lessen the pain of these pesky mouth sores??

Thank you, Kat

Written by
Kathy829 profile image
Kathy829
To view profiles and participate in discussions please or .
10 Replies
LipsNClips profile image
LipsNClips

Coconut oil and Oil of Oregano* are my go-to home remedies.

*Oil of Oregano is a blood thinner, so check with your doctor!

If I need to take the edge of mouth sores, I rub with raw garlic. If I don't think ones healing well, I cover cotton wool in hunny and hold over as long as practical- sure this is terrible for my teeth so I don't do it that often. As I treat other sores with hunny and or cammomile with good effect, I sip hunny and cammomile tea (own made from fresh leaves definitely best) but I don't know if it works or just feels nice. I also keep cold cammomile tea in the bathroom to swill with regular in the hope it will improve pH in my mouth - again don't know if it works. I also keep cucumber peel in the fridge to hold over painful sores - but it might just work because its cold.

What do you do?

thomas_tz profile image
thomas_tz in reply to

I have always thought of camomile as a mild disinfectant; I wouldn't keep it for long after boiling though, as I have been told it can go off and get fungi.

thomas_tz profile image
thomas_tz in reply to

I have always thought of camomile as a mild disinfectant; I wouldn't keep it for long after boiling though, as I have been told it can go off and get fungi.

in reply tothomas_tz

I don't know about its disinfectant properties, but I find it calms down a lot of my minor topical problems. It tends to soften my skin and reduce inflammation so your probably right. I've never had any grow fungus, but then again I usually use it all in less than 2 days. As for using it for mouth sores, I don't know if its a bit of a placebo , but it does take the edge of for a while for me.

Jade profile image
Jade

I was given Adcortyl in Orobase on prescription by my dentist. Very effective. I have been so lucky though because my ulcers went once I got on warfarin and I only get them now if I bite myself, silly.

Funnily enough , after having had Warfarin, which I need for life, I was temporarily put back onto Clopidogrel and my mouth ulcers returned and were the bane of my life. I could do nothing to get rid of them , so I am sorry to hear you're suffering from them. I have been back on Warfarin for a monthnow, and , even though my INR isn't as high as they want, it is slowly rising and guess what? No mouth ulcers, they have disappeared again. I still have what I call lead legs, sluggish blood so I knew my INR was not normal or raised much, I was on 12mg but now I am back on my regular 9mg of Warfarin as my blood INR is going in the right direction but I haven't gotten over the effects of the Clopidogrel. Does anyone else have problems when they were , if they are on Clopidogrel? Like I say I had mouth ulcers like Kathy829. Good luck!

SueLovett profile image
SueLovett

I agree with the yoghurt bio of course. Also take Probiotics.

The other thing that is good is Manuka honey.

x

Kathy829 profile image
Kathy829

Wonderful answers! Thank you all so much. I like the tea and yogurt ideas. Since I start warfarin in three weeks I am excited to hear it might put an end to the ulcers completely . I never knew they were blood thinning related although I was aware they were APS / Hughes related.

I was just taking another look here to see if anyone had good home remedies and I got to thinking how little I suffer in the summer. Could be a coincidence, but I eat a lot of tzadziky during the summer - Greek yougart & cucumber & garlic (and dill, but I doubt that helps). Also my favorite summer treat is yougart and hunny, both of which repeated here.

Not what you're looking for?

You may also like...

Thoughts Needed

As I try to wrap myself around this I am thinking something that I’m curious if you agree with it....
TwoH profile image

Help Advice Needed

Ive had 7 PE's even while taking warfarin. Had a stroke and a number of TIA's and a Heart attack....
Rose4u profile image

Help needed

Hello I have a 13yr old daughter has been suffering migraines since she was 5. It has been a long...
Onamiss profile image

Help needed re Diagnosis information

Hi everyone. My doctor is testing me for APS but said she could only do blood tests for...
Aliking4 profile image

Help needed

Hi All can any one help?? Ive just been to the because of severe hurting joints in feet ankles,...
diane1428 profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
MaryF profile image
MaryFAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.