Just diagnosed Suzi90

[Suzi90]

I'm new here, was diagnosed with hepatitis c and fibrosis. I'm not on treatment yet, hopefully next week. Just feeling very scared by it all, but the quicker I can have my meds the better. I am pleased this site exists, I don't feel so alone.

[Sillysausage234]

Hiya suzi,welcome and good to see you here,and look forward to seeing you get better🙋🏻‍♂️X

[Suzi90 in reply to Sillysausage234]

Thanks so much. Feels better already!

[Sillysausage234 in reply to Suzi90]

We are all special in this club as we’ve all been to hell and back ,👍

[Suzi90 in reply to Sillysausage234]

Thanks 🙏 again Alan234, this will be my lifeline 🤒

[Sillysausage234 in reply to Suzi90]

Your very welcome,it’s such an anti social disease and hard to speak about but don’t be alone ,do you know what your genome type is,and have they told you what the name of your treatment will be yet?

[Suzi90 in reply to Sillysausage234]

Still waiting on genome type, hoping it will be through for next week so can start meds, sure nurse said something beginning with an H. Can't remember full name, as she was guessing at which genome type she said it would most likely be. She thinks she will be in touch before Tuesday and we will meet then, she will phone soon as.🙏

[Sillysausage234 in reply to Suzi90]

Sounds like you’ve got a good nurse that’s good,mine is very good got her mobile no and she said ring anytime if I had any dramas,my treatment went really well so had no need to make any s.o.s.calls,but good to have her on my side just in case,it did help knowing I had support as I had heard the horror stories about treatments and did turn the old interferon one down years ago.it did help finding this site too as it’s good to speak to to people who know what it’s like living and coping with the disease,but youlle see your treatment will be ok and over in a few weeks and youlle get yourself better👍

[Lucien777 in reply to Sillysausage234]

Lol Alan. My other half said to my nurse can I have her mobile number and she was like: no lol!! Seems your nurse is very good!

[Myob67 in reply to Suzi90]

If it's Harvoni then there appear to be no side effects. My hep c was cleared in 3 weeks but whole treatment takes 8 weeks.

Good luck.

[Suzi90 in reply to Myob67]

Thanks 🙏 so much for the ups on Harvoni, I am waiting for a call and letter to let me know for sure. Will let you know soon as. Thank God for the good people on this site. I was so alone, now I feel part of something, unique and amazing 😉🤒🖖🙏

[navigatinglife]

Hi suzi, You'll be fine, great that you're getting treatment so quickly, the NHS are sticking to their promise and trying to eliminate this virus for good 😁 this site saved my sanity 😂we're all here to support each other and hold each others hands. hepc trust online has latest information but this forum is amazingly supportive and a vital link from diagnosis to cure and beyond, welcome aboard 😍😍😍😘

[Suzi90 in reply to navigatinglife]

Thanks 🙏 so much, so happy 😀 I have joined, will keep me from lying down all the time. Thanks again. Good people.

[Cara78]

Welcome to our site! I have had good relief and information on here! I wish you well on your treatment. I'm posting through the days I'm on maviret and probably post after it finishes cuz it's really helped me! I'm genotype 1a and on day 11 of maviret for 8 weeks!

Rootin for You!

Cara

😊

[Cara78]

Maybe yours is harvoni! It's good you have joined us!

[Suzi90 in reply to Cara78]

Thank you so much for such a warm welcome from you all!! Still waiting on word about which genome I am, nurse hopes to have word and meet up on Tuesday coming. Scans done, got fibrosis, just waiting now for a letter or phone call and I will get my treatment started. Nurse suggested it would be this drug, but I suppose depends on genome. Whatever, the quicker I get started the better. I just couldn't believe how f***** up my head was on hep c diagnosis,never mind fibrosis. I live with my cat and feel so lonely, now I have all of you Angels. Thanks so much for the support.🙏🤒🤘 keep well x

[Sillysausage234 in reply to Suzi90]

🙋🏻‍♂️

[Cara78]

Awww that's beautiful😊I was lonely with my two rabbits. Them humping away n me well......not very active😂😂😂

[Suzi90 in reply to Cara78]

My cat is just an old bagpuss lying sleeping most of the time, like her maw!! We both have arthritis and make a fine pair. I don't know what I'd do without her company.😻 I'm doing my best at the positvity thing as I know its the best way to go. Feeling yucky so will try a read, and then up and out of bed again, and so it goes 🤒😴 , take care cara, your an angel x👼🤘🙏

[Cara78]

Awww old bagpuss, I remember that on tv lol, are you glaswegian cuz u said maw😊I am. Another day ahead of us! I'm still in my kip!

[Suzi90 in reply to Cara78]

Well, I’m right in the middle, between Glasgow and Edinburgh! ! Been up and down all night! Doing a wee bit of this and a wee bit of that, still running around in my house coat!! Want to have a good shower and get dressed, to an extent today. Waiting on letters from pip and nurse, to get meds started and DLA stopped!! However, we still be here 🖖 and be grateful. Hope you are keeping up the fight, have a good day Cara, awe the best 🙏🤒😍xx

[Cara78]

Are you gony go to welfare rights about your dla? Every council has their own appeal team.

[Suzi90 in reply to Cara78]

Didn't even know the council had an appeals team, been doing it all thru cab. All the councils round here been shut, but one a couple of towns away. See what they do, mandatory reconsideration, then appeal. Got copd, oesteo arthritis , anx & dep, now the hep and fibrosis. They don't know bout last two, yet. Anyway, got enough to be getting on wi!!! Never made shower yet hoovered up and mopped, goin fur a lie doon noo 😞,maybe a wee read o the same page again, or just shut the noggin off for a while, hope you're doing alright cara, take good care , no word today😩, but always the morra, bye for now,xx 🖖😿🙏

[Cara78]

I'm doing ok! Positive vibes your way! In my bed😂😊studying away, a bit of catching up to do, not got my laptop yet so only so much I can do! You take it easy💤💤😇😇

[Suzi90]

Good, cara. Keep on keeping on with the studying, you can never get enough knowledge. No laptop for me either way back in the day when I was a sassy young student!! Books are the biz, books are fab. Anyway, let you get to grips with the studying. Be good,xxxx🖖😴

[Sillysausage234 in reply to Suzi90]

You ok suzi?

[Suzi90]

Not too hot today. Pain in left kidney region, coming and going. Feel tired but been thinking bout what I should be drinking , tea wise. And what food to avoid and things like that. Hopefully get advice from nurse when she gets in touch. Anyway, hows you? 🖖🌈

[Hidden]

I was diagnosed late last year, I have cirrhosis. I’m on treatment now, started the week before Xmas ... the virus is now clear. I know how you are feeling, scared and overwhelmed, the shock of being diagnosed and disbelief that you can have this virus. It’s like being run over by a truck, your emotions and fears and worries. Stay on here with the lovely people who have been through treatment and stay off google is the best advice I can give you, be kind to yourself xx

[Suzi90 in reply to Hidden]

Thanks so much, you must be so brave, I'm just hanging on a day at a time, and waiting for word of treatment, think that they must still be waiting on genome type for the hepatitis c, seems like forever, but back to you, thank you so much for your support and advice. Hope you're doing okay. People like you are angels 🌈🙏😀x

[Hidden]

Hells teeth, I’m not brave at all ... and I’m certainly no angel 😇 I was dreadfully scared at first, but then I got angry. So very very angry that when I’ve never drunk alcohol or taken drugs or slept around that still I had this filthy virus and a damaged liver. So it was fight not flight, fight the virus, win the battle for my health and strength. That’s got me through every day of the last few months x

[Suzi90]

Hi there, hope you are okay, hoping to pick up my treatment the morra, mavaret, thank god, got to get this fight started🙏💪, . I'm like you, don't know what happened, such a shock to the system! Still can't get my head round it, and probably never will. Here's to all these good people who are on this network and their support!👌👼xx