Totally freaking out

[Lucien777]

Hi guys, I think I'm loosing it. Picked up my meds on Tuesday and hospital said it's ok to start Saturday, but I thought get it over with and wanted to start taking them this morning, but can't get myself to take them. Just keep looking at the half shopping bag full of meds for four weeks and totally freaking out. Have never been so scared :/ I have to take six ribavirin two exviera and two vikierax a day. So six in morning and four in evening. I'm off to work now, but I'm so so anxious right now, this is not like me normally. Thanks for listening just had to get it off my chest. Hope you are all doing well, and have a good day at least the sun is out here 😎

[navigatinglife]

Hi lucien, wait until you can get your mindset right. Once you've started the initial anxiety is gone. It's just the starting. Sorry you have to go through this but it's worth it and so are you 😊😍Get accustomed to them and see them as your friends not the enemy, the virus is your enemy and these friends will help you get rid of the enemy 😂😘😘

[Lucien777 in reply to navigatinglife]

Thank you for your kind words ☺️ I think I just have to get a grip on myself really. I wish I was unemployed right now, I'm certain I would be much less scared then. It's just work I'm freaking out about 😑 I know there is no way around it, but I got myself so worked up that I can't even sleep. Must calm myself down!! Thank you again and I hope you are doing well under the circumstances 🍀🍀🍀

[navigatinglife in reply to Lucien777]

Yes I felt the same. But on the plus side having to work prevents too much focus on the treatment we haven't got the time ☺ Thinking of you 😍 and don't be hard on yourself 😘

[Lucien777 in reply to navigatinglife]

That's a good point! Im more scared of being unable to work, but I sorted that out just now by having a word with my boss and she says don't worry about work! Lol! She is really lovely. So it looks like I have sorted most of my worries, ready to start, will do it Saturday morning as planned 👾☣️🔜💪👊👋😀

[Lucien777 in reply to Lucien777]

And thank you!! 😘

[navigatinglife in reply to Lucien777]

Excellent work lucien 😍 now you're in control. 💪👍👌✊thanks for letting us know 😊

[Lucien777 in reply to navigatinglife]

Feel so much more positive now ☺️thank you all!!

[Sillysausage234]

Hi lucien bite the bullet and go for it get the little virus fockers running for the hills good luck .

[Lucien777 in reply to Sillysausage234]

Yes I will kick them hard in the butt 😁thanks Alan!

[Cara78]

Go for it! We are rootin for you! I understand your dubious. It seems like alot of meds but at the very least you will get a lower viral load. Can you take time off work? Then again you may not have bad effects😊I take my hat of to you all that have kept a job down, I would find it challenging but mostly busy is best.

[Lucien777 in reply to Cara78]

I was terrified re. Work, but have just worked out slightly reduced hours with my boss, she knows what to expect now if the shit hits the fan and she is happy to bear with me for the 12 weeks. I consider myself very lucky for all the support ☺️ thank you too! 🤗

[Lucien777 in reply to Lucien777]

Cara weren't you also on treatment at the moment? I hope you are getting on ok!? I wonder if the maviret is better than taking the ribavirin, but I asked my nurse about the and she said I can't have them lol! Although I think we are the same genotype, maybe different areas give different treatment. All the best to you and hope you kick those little buggers up the behind 😎☺️

[Cara78 in reply to Lucien777]

Usually find people are real when you are😗😙😚I wish u all the happiness cuz life can be tough! Xxx

[Cara78]

Hi Lucien! Are u in UK? I'm on day 11 of maviret for 8 weeks genotype1a. I think if liver is sclerosis it's different again. I would get more answers of your nurse. I know that if a person has had hep b in past they cannot go on maviret. I'm not to clued up. If your not totally ill with the hep c and you have bad gut feelings I would go back and get a clearer reason as to why they have chosen this particular treatment. There is no harm in that and take charge of the convo with nurse. She's not doing you a favour shes doing her job

[Lucien777 in reply to Cara78]

Yes I'm in UK, I have asked her a few times and it looks like the treatment they do here in the southwest is the one I will get. I'm treatment naive and have no cirrhosis also never had hep b. I'm pretty sure it has to do with different areas. To be honest since I have my bag of meds already here, I might as well start them. I think if you have genotype 1b you only need the exviera and viekirax but not the ribavirin, so would be only 4 tablets. But there have been people on my treatment also in UK, so not sure why there is such a difference in treatments across the country.

[Cara78 in reply to Lucien777]

Please get second opinion xxc

[Cara78 in reply to Cara78]

Remember we are guinea pigs regarding all treatment. If u can get maviret then you should it's all down to money honey. Refuse it ribivarin makes u ill.

[Lucien777 in reply to Cara78]

I think it's because you are in Scotland, I gathered from your old posts 😉 it does seem that in England my treatment is the one they use, at least Nice and help c trust seem to think so. I will just have to suck it up, other people got through it, so will I 😎

[Cara78 in reply to Lucien777]

I would Refuse ribavirin! Up to u

[Lucien777 in reply to Cara78]

It's not quite that easy though, I have waited for treatment for over twenty years, and three years since it was finally turn and all the people with advanced liver disease were treated. I don't want to have to take the ribavirin either, but I just don't have the time to wait god knows how long again to get something else, or a second opinion. We live quite rural so to get a second opinion I wouldn't know where to start as only this hospital around. How long will it take for me to get all this sorted, plus as I already have one month worth of meds at home now, do you think they will just bin them? I said to her if there was any treatment without ribavirin I could have would they give it to me and she said of course. So it seems you are just lucky to be in Scotland. There are a few other people on here that have my treatment, why would they not have maviret if it was available here? Guess we are just unlucky right now 😐

[Lucien777 in reply to Lucien777]

Do you not think it could be possible that it has to do with different areas ? 😕

[Cara78 in reply to Lucien777]

You may be right. I'm not sure. I'm similar to yourself I'm about 20 years infected too. I think one of the drugs you take is new. The fact treatment is shorter tells me that. You may sail through It, and you've got support. Maybe say to nurse that I'm in Glasgow. I didn't have a say I what meds I got. She gave you wrong info cuz I'm genotype 1a.

[Lucien777]

Ok out of interest rang my nurse and she says that as far as she knows it's the same treatment in all of UK for gt 1a. She says they only give maviret for gt 3? So maybe it's a cost thing? No idea. She asked me which area you are in UK, are you perhaps in Scotland? Good for you to manage to get maviret though!! 👍

[Cara78 in reply to Lucien777]

Fight for maviret....wait and see what happens to me

[Cara78 in reply to Cara78]

Her answer is to vague for me. I'm treatment innocent aswell. That ribivarin hasnt got good press

[Lucien777 in reply to Cara78]

Yes I know. Maviret is also cheaper than what I'm getting, so really confused why it's not available in England, please if any of the others knows anything re. this correct me if I'm wrong! X

[Cara78]

What makes me wonder is her statement "as far as I know" not definite for professional 😂😂

[Cara78]

They are not used to people being confident. Maybe you'll clear it and I won't lol

[Lucien777 in reply to Cara78]

I'm sure you will clear it!! Good luck to you 🍀 🍀🍀 keep positive 😎

[bunnyroo]

Hi Lucien777. You should know that, after a crappy month, my Ribavirin dose has been halved. Still weak and bit yellow but sickness pretty much gone and i feel fine. Nurse said we 'went in hard' with Ribavirin and it could stay at the lower dose until near the end to give things a boost....and i agree. I've got to take this a total of 24weeks and if i can do it, you can do it in 12, right? Yes, i don't deny i felt really, really shitty (in more ways than one) but I AM NOT NOW! Go for it. Also, all this pointless discussion on arguing your drugs: you probably won't get anything else. This is tailored to rid you of Hep C. People are on different drugs for many reasons. Ours is the most expensive - why would they give us the dearest drugs simply at random/on postcode?? Answer? They wouldn't. If you want rid of your virus, take the drugs. You can moan and complain on here like i have- no one appears to mind. Surely the most important thing is to kill this virus? Then open wide, Lucien777. Good Luck. And we're all here for you if it gets bad for a little while. Take care.

[Lucien777 in reply to bunnyroo]

Thank you for your reply, I really appreciate it! Yes the way I see it, I either take the drugs and have a shot a clearing this damn virus or I won't. I'm also sure that they wouldn't give me ribavirin if there was another way. No one want store take Ribavirin if they can help it, but we have to. I'm glad to hear that things are much better for you now ☺️onwards and upwards 😎 I will start tomorrow morning, and put it all in god's hands ( I'm not even very religious lol) all I can do is wait and see. So happy for you that you are better now, and good luck to you too !! 🍀🍀🍀

[Lucien777 in reply to Lucien777]

Meant to read no one wants to take Ribavirin if they can help it 😂

[bunnyroo in reply to Lucien777]

Atta Lucien777!!! Also remember that not everyone has the reaction i did. You could be a lucky one! All i can tell you is it won't last long. And the benefits MUST outweigh the discomfort. Thinking of you, knowing just how you are feeling. Keep warm, drink and eat as much as poss, Good Luck 🍀...... I'll keep an eye out for your updates. Here for you anytime.

[Lucien777 in reply to bunnyroo]

Thank you so much, feeling fine so far apart from a bit of a bloaty stomach/chest feeling and an occasional spacey almost dizzy feeling☺️ expect it will probably take a couple of days before it gets worse, or maybe not, positive thinking 😅 just ate a massive pear and feeling ok in stomach at the moment. Take good care of yourself and all the best to you! X

[L444]

You will be okay I know it seems a lot make sure you eat food with it good luck

[Lucien777 in reply to L444]

Thank you !! Hope you are getting on ok☺️

[Sillysausage234]

Your hep status has been well studied,trust your health team 👋 good luck now and let us know.

[Lucien777]

Thank you 😅 well first six tablets are down, let's give those little buggers a shock they will remember 😂

[Sillysausage234 in reply to Lucien777]

That’s the spirit team hep👋 Fighting the war on on the little genome fockers, have that mindset youlle be fine,don’t read about the side effects see how you feel yourself if it gets a bit rocky rest up a bit,eat sensible and drink plenty of water,not long to go now.

[Lucien777 in reply to Sillysausage234]

Thank you ☺️ I keep picturing the virus being kicked up the backside in there, and it helps 😂

[Sillysausage234]

They are dying as we speak🤪😊

[Lucien777 in reply to Sillysausage234]

Hehe 😊RIP to them 👍lol