Got told I might have Brugada syndrome and could use some advice while waiting on a diagnosis

[magpie2134]

So recently I began to have these weird episodes where I would almost pass out/could not move without help due to dizziness as well as heart palpitations and in some instances a high hr. I went to the doctor thinking it was POTS, but due to family history, symptoms, and an EKG the doctor says that it could actually be Brugada syndrome. I am getting a heart monitor and an ultrasound as well as a meeting with a cardiologist soon, but it will be over a week until that happens. Honestly, I am scared. One of my family members who has Brugada almost died from it (his heart stopped and they had to resuscitate him). I want to know what to actually be concerned about but looking up symptoms only sends me into a spiral. Does anyone have any advice on reducing anxiety around the possibility of having Brugada? I am trying not to think about how dangerous this can be but it's hard.

[HollieAdmin Administrator ArrhythmiaAlliance]

Hello,

Thank you for your post. I am sorry to hear that you have been struggling. It is completely understandable to have worries around a potentially new condition.

If you have any concerns, please speak with your Doctor as they will be able to advise you personally.

If you would further information about Brugada Syndrome, please download our Brugada Syndrome Booklet which can be found on our webpage:

UK and International: api.heartrhythmalliance.org...

US: api.heartrhythmalliance.org...

Alternatively, if you would like any support, please complete our contact form and a member of our Patient Services Team will be in touch:

UK and International: heartrhythmalliance.org/aa/...

US: heartrhythmalliance.org/aa/...

Kind regards,

HollieAdmin