What’s it like? : I have had PAF since... - Heart Rhythm Diso...

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What’s it like?

Crumble2 profile image
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I have had PAF since 2013, and controlled it a lot with diet, exercises etc. I started with a 5 year gap, then 3, then 2 and now settled to every 3 months or so. I realise I’m probably going to go into permanent Afib at some stage (if that isn’t necessarily true, please tell me). My question is; what is it like to live with permanent Afib? I’m not well when I go out of rhythm now; breathless, tired, pounding in my head and it all gets worse if I walk about. I can’t imagine living with that 24/7. Does it settle down eventually? Will I be able to live a fairly normal life? Thanks in advance ……

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Crumble2
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Malayabalaya profile image
Malayabalaya

Hiya You don’t say whether you’re having any treatment for the AF as it’s got worse. Think people like my husband who has had it a few times are generally on beta blockers eg Bisoprolol and/or anti-arrythmics and blood thinners eg Apixaban. Also cardiac ablation helps some people. You shouldn’t have to live as you do with the discomfort. A specialist cardiologist is worth a visit if you haven’t seen one recently. Good luck and best wishes

LindaDaisy profile image
LindaDaisy

I’m in permanent AF and I find it better in some ways. I still get tired and breathless but not so much. For me the trauma of going from normal sinus rhythm to AF was the worst thing and until it reverted was hard to deal with. Now things are calmer.

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