re nhs feedback: I was much encouraged... - Heart Rhythm Diso...

Heart Rhythm Disorders Support

6,877 members2,857 posts

re nhs feedback

stargazer61 profile image
1 Reply

I was much encouraged by the phone call i had today with a lady from the Patient Experience Team. I have now written out my feedback/concern ending with some suggestions such a go-between like an arrhthmia nurse and an agent between forums such as this and the people who need to hear it most and in general a better form of aftercare. As she said - how can change be implemented without feedback? I am sending her what i have written for her advice on whether it is all relevant and she will call me to discuss whether i want to offer it as a complaint (no), a concern (yes) or feedback (yes) and what i wish to happen - ie would i want it to go to the team it involves, do i want someone to contact me and tell me the result of my feedback, actions taken and so on.

i mentioned how much this forum had helped me and that there are others just as upset or confused etc.

If just a few of us give feedback, we could play a part in making the experience a little bit better for someone else. I know i just couldn't let this go as i feel so much of my suffering could easily have been alleviated if i had someone to help me in that long wait before seeing the ep. If you feel you can add some feedback for the nhs please do it. Much as i'd love to think there are not people to come who will discover that they too have af or svt or other issues discussed on this forum - how likely is that? Even positive experiences will fill the knowledge gaps in and maybe good practice will spread and multiply!

Written by
stargazer61 profile image
stargazer61
To view profiles and participate in discussions please or .
Read more about...
1 Reply
PattiJay profile image
PattiJay

Wow stargazer61! Someone from the Patient Experience Team called you? I am so happy for you!

Just knowing what WAITING does to your soul, it makes you crazy, I just cannot imagine how you survive! In the states at least I can go to the ER if things get really bad. I love it how "complaint", "concern", and "feedback" were discerned as ways to communicate between each other (so awesome!) and gaps in medical knowledge and experience make it hard, and also the many different kids of heart failures we all have! I tend to want everyone to go to the EP like RIGHT NOW! And I worry about all of you so much! I can't wait to hear the rest and resolution! :)

Not what you're looking for?

You may also like...

Help a fib and svt ???

Does anyone here ever have svt for 3 years, then went in with the pounding heart beat after 16 hr's...
scardycat profile image

The state of the NHS

Having been on this forum for some on the now I have to say how depressed I feel when I think of...

AliveCor spikey tracings

Hello, everyone. I am relatively new here and wondering whether there is a site where I can see...
pat1234567 profile image

SVT and Coronavirus

Hi Everyone Just wondering if having SVT makes me part of the vulnerable group of people. I am a...
DCCa profile image

SVT triggered by orgasm

Hi I am 44 years old and male. I had my first SVT just over a year ago. I ended up in A&E and the...
designjunky profile image

Moderation team

See all
Kelley-Admin profile image
Kelley-AdminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator
jess-admin profile image
jess-adminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.