Latest blog from: hopegoesupanddown.blogspot.com - a record of the hope, terror and unknown future faced when the one you love most in the world suffers a brain injury.
In a very weird way brain injury is both isolating and inclusive. All of the books tell you that after the initial acute phase people who have been very involved will become less present, often finding if difficult to know how to interact with the new person the survivor inevitably becomes. One hates to be a cliche, but that has definitely happened to us. That's not a dig by the way, it's just the way it is.
The compensation for this is the new network of virtual friends I have found through social networking. Both Twitter and the Headway health unlocked site have brought me into contact with good people who understand, would never judge and give me endless support and encouragement.
I think my favourite thing about the very good people on the Headway forum is the utter lack of bullshit; whether it is because of frontal lobe damage or just simply the honesty of people who have experienced true trauma, I know that what I read is real, unvarnished and truthful; even if that means sometimes it is a little blunt! I can count on one hand the number of people in my non-virtual life who are that genuine; wouldn't be great if everyone was? Apart from Jake obviously, I could REALLY do without some of his frontal lobe damage induced bluntness!
This life is far from easy, but the comradeship and acceptance of my virtual friends makes it easier to cope.
This life also makes you look at problems a little more creatively; when Jake sustained his severe injury 17 months ago he wasn't expected to survive and no one could have predicted that last weekend he would stand up next to his great friend Mike as his best man. With such a complex mix of cognitive and speech deficits the best man speech was always going to be a bit tricky, but with the help of my sister in law's colleague (and very good people) Andy Davies, we still managed to make everyone cry with this!