Just picked up on this article during my research ... - Headway

Headway

11,092 members13,243 posts

Just picked up on this article during my research on 'encephalitis' this morning! 'Mail online health'

rubikscube profile image
6 Replies

The devastating brain illness encephalitis affects up to 4,000 Britons a year. It can strike anyone at any age and is commonly caused by the herpes, or cold sore, virus. Three years ago Simon Rycroft, an economic development officer with Bury Metropolitan Council in Lancashire, contracted the illness. The legacy for his family - Kathy and their children, Hazel and Daniel - is life with a man who often cannot remember what happened five minutes ago. Here, they tell their story. . .

Read more: dailymail.co.uk/health/arti...

Written by
rubikscube profile image
rubikscube
To view profiles and participate in discussions please or .
6 Replies

I've had several vaccinations even for things like rabies, I never once thought I could get encephalitis for something as safe as a vaccination. I guess there's a price to pay everytime you go against nature's way.

rubikscube profile image
rubikscube

Hey, they never even got to the bottom of my diagnosis! I just went to bed with NO symptoms, fell asleep, then went into seizures....

Hence the reason I am constantly researching this mystery in my life

And this long term recovery of the brain which will never see my old self again!

in reply torubikscube

Nor have I gotten to the bottom of my diagnosis, I'm still emptying that barrel. One positive though is that I'm well-informed on medical literature, now forced to be a researcher of my own condition, looking for answers, i'm almost on a mission you could say. People tell me to just forget it and live your life, I tell them that life isn't worth living in this state, maybe i'm too idealist but I'd rather go down swinging than with a wimper.

rubikscube profile image
rubikscube in reply to

Idealists, we are, living on the inside, with maybe too much hope. Now I have an image of a fellow idealist emptying out a barrel - I see us as 2 monkeys, scratching our heads - no different to the doctors trying to figure out wtf the human brain is all about!

I pulled out an old dvd on friday night 'pink floyd the wall' which I sat and watched with Anthony with a new perspective, it has brought a new light to my condition as it deals with post war trauma and obviously breaking through a wall! and flashbacks...I wont be watching it again for another 10 years but it has certainly opened up a few new pathways for me at this stage of recovery.

No, i cant stop being that idealistic monkey, searching for new answers but what the Wall has brought me to is that I need to find peace in the life I have been brought back to.

in reply torubikscube

Well, all I can say is i'm now on the right track, remembering to take the doctor's words with a grain of salt and shoving evidence in their faces if they're clueless on treatments that might work.

Hmm..not sure why you only watch it every 10 years, for nostalgia?

cat3 profile image
cat3

A vary interesting and moving article. As in your own case, it shows such enormous courage.

Take care, cat x

Not what you're looking for?

You may also like...

FIRSTAcute ILLNESS following ABI

First acute illness was after ABI 9 mOnths ago I started with symptoms of a UTI a few days started...
Charlie90 profile image

Knowing what you know now, back then....

An acquaintance mentioned something a while ago that it quite interesting. Since your injury /...
sospan profile image

Post Encephalitis advice please

Was diagnosed treated and discharged from hospital with Hsv-1 Encephalitis 4 years ago knowing...
Mgray13 profile image

Subarachnoid haemorrhage

After my post of part 1 hospital, I have just finished part 2 family & friends. This Vlog is to...
Kavib profile image

Absolutely Terrified

Since my varices a couple of years ago which resulted in me placed into a induced coma and a TIPS...
jimboriley52 profile image

Moderation team

headwayuk profile image
headwayukPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.