ADVICE PLEASE : Hi all.. I’m going to try my... - Headway

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ADVICE PLEASE

SJTJ profile image
SJTJ
9 Replies

Hi all..

I’m going to try my bestest not to ramble and stay on point..

My partner of 28 years suffered a serious TBI, just over 3 years ago.. He has done remarkably well considering, but he is a completely different person 😔 either lovely or horrendous nothing in the middle!! Just lately his headaches and moods have deteriorated he will not take any advice from anyone not even his sons, who are so good and patient..

Anyway cut to the 😢 he went out yesterday @ 4 pm and drank until 2oclock this morning, as you can imagine he is in terrible shape today.. I’m at my wits end, please if anyone has any pearls of wisdom, I would appreciate some please! I don’t know why I keep putting up with this 😭 thanks for sticking with me 😘

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SJTJ profile image
SJTJ
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9 Replies
James1984 profile image
James1984

Has he opened up to anyone about his feelings, a psychologist, doctor, friend, etc.?

He can't keep it all bottled-up, he needs to seek help.

I know this place has been the most understanding of me in all my years of having a brain injury, so tell him he's welcome to come on here and chat to us. We know most of all what it's like to live with a brain injury.

I personally talk to God and Jesus Christ through prayer as well. It was His miracle that stopped me from death, or at least being in a wheel-chair for the rest of my life.

Talking through prayer is a very humbling and honest experience. God works in mysterious ways, but He does answer you.

Make sure you take of yourself too. There is a lot of information on headway.org.uk.

Here is some information for yourself:

headway.org.uk/about-brain-...

SJTJ profile image
SJTJ in reply toJames1984

Thank you ☺️

WonderingWanda profile image
WonderingWanda

wow what a bender! I assume he was not a drinker before ?? It sounds like that was a desperate move. He needs help and so do you. I am sorry this is what you are left dealing with. I don’t have much in the way of advice but it does sound like you both need to reach out for some extra help. I hope you find some.

SJTJ profile image
SJTJ in reply toWonderingWanda

He used to enjoy a drink, but has been advised not to since his injury..I have been trying to get some support, but it’s hopeless! Thank you for replying x

Mhelpsme profile image
Mhelpsme

Hello SJTJ

I feel for you, you’re also having to deal with a difficult situation and Christmas can be a nightmare to fight through.

I had my TBI two and a half years ago and up to about three months ago I made life hell for my husband and two grown up sons. This is something I’m deeply sorry for, but at the time I was struggling with the new me and feeling angry and frustrated. I felt alone and had trouble getting medical people to understand what was happening to me. I still have bad weeks, but I’m getting better at recognising the triggers and try to avoid putting myself in that place.

For me it came down to acceptance / fatigue / anxiety / telling others of my hidden disability. How everyone handles their issues will be different and it’s just finding your own pace.

I’ve been having counselling since summer. The first set was through Headway. The course ran for eight weeks, but when it finished I was advised by my counsellor to contact them again after Christmas - which was the period I had to wait for further counselling. However, my GP arranged counselling for me also and that began last month.

I also suggested my husband and sons had counselling to help them through this.

Speak to your GPs about the situation and ask for counselling. Whilst talking to them ask if they would speak to your husband about this also.

James1984 was right when he said this group is a good place to talk anonymously with others who understand exactly what he’s going through. Without this group at the beginning life would have been very different. They understood, when no-one else did, all the things happening in my head and the effects of the injury on everyday living.

Have you heard of Brain & Shine, that’s another group ran by a couple who are living with this and they deal with both parties sides.

brainorshine.com

Please remember you’re not alone. People here can listen, understand and offer advice to both your partner and you.

Mhelpsme

SJTJ profile image
SJTJ in reply toMhelpsme

I’m sorry for your struggles! Thank you for some good advice, he is a very private person so doesn’t open up easily x

skydivesurvivor profile image
skydivesurvivor

shit time 4 u?!! From experience I can say, in time he will regain/ recognise the old him?!! It will be a long journey 4 u both!! Hope u find much needed support here. Feel free to vent y frustrations here!! Hope we can support u from personal experience will be tough but hope we can support y both, try n get him to use this site too? Helped me greatly. Clue for him is to SMILE to spite his frustration!! Good luck to y both!! Ph & happy new year!!

SJTJ profile image
SJTJ

It is shite with bells on! Thank you for your advice much appreciated x

PurpleOverlord profile image
PurpleOverlord

Hi, welcome to the group. Since my brain injury 2.5 years ago, living in my head is absolutely exhausting. Every single thought happens in great detail, and goes on for ages. My therapist tells me that thoughts that used to be subconscious for me are now conscious. So I need to unwind, often. That means shutting the voices down for some peace and quiet, occasionally by means of alcohol. I also find that long walks or bike rides in nature are relaxing. Recently I discovered that medical cannabis is newly available in the UK, and it's been a life-saver for me.

What the previous folk have said is true, learning to live with a brain injury is a difficult journey, and a therapist is a wonderful companion. As I talk to my therapist, I am finding new ways to connect to Purple v1. Before, I had given her up for dead. But I'm learning more and more about what we have in common. I'll never be Purple v1 again, but instead of being a whole new Purple v2, perhaps I'll wander over to Purple 1.5 as time goes by. 😊

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