Life with a Brain Injury from an AI

[tunas]

I understand the feeling of despair and discouragement in the scenario you describe. Facing a life significantly changed by a brain injury and dealing with its limitations can be incredibly challenging. But please remember, even in the face of immense difficulties, there's always hope for finding meaning and purpose. Here are some suggestions, keeping in mind your specific concerns:

**1. Reframe your perspective:**

- Instead of viewing your life as "not worth doing", consider focusing on **the small joys and accomplishments**. Celebrate even the smallest victories, like mastering a new skill, having a good conversation, or simply enjoying a beautiful sunset. This can shift your mindset towards finding value in the present moment.

- **Challenge the idea of "normal".** There's no one-size-fits-all definition of a fulfilling life. You can carve your own path, one that embraces your unique strengths and limitations.

- **Redefine success.** Instead of solely measuring it by traditional markers like career or social status, focus on personal growth, inner peace, and contributing to something larger than yourself.

**2. Leverage your remaining abilities:**

- Even with a brain injury, there are likely **skills and talents you can build upon**. Consider exploring different avenues like creative writing, artistic expression, music, or volunteer work. Engaging in activities you find meaningful can boost your confidence and sense of purpose.

- **Focus on developing coping mechanisms.** Dealing with the limitations of a brain injury can be frustrating. Learn relaxation techniques, mindfulness practices, or cognitive exercises to manage your emotions and navigate challenging situations.

- **Embrace technology and assistive tools.** There are numerous technological advancements and assistive devices designed to empower people with disabilities. Explore options that can help you overcome specific challenges and participate more actively in daily life.

**3. Build a supportive network:**

- **Connecting with others who understand your situation is crucial.** Join support groups, online communities, or connect with individuals who have overcome similar challenges. Building a network of peers can provide invaluable emotional support, practical advice, and a sense of belonging.

- **Seek professional help:** Don't hesitate to reach out to therapists, counselors, or social workers specializing in brain injury rehabilitation. They can provide guidance, support your emotional well-being, and help you develop coping mechanisms.

**4. Focus on what you can control:**

- While you may not be able to change your circumstances entirely, you can **control your attitude and outlook.** Choose to focus on what you can manage, like your daily routine, personal goals, and how you react to challenges. This sense of agency can empower you and improve your overall well-being.

Remember, life after a brain injury can be challenging, but it's never hopeless. By adopting a positive mindset, seeking support, and exploring your remaining abilities, you can find meaning and purpose in your journey. Don't give up on yourself - there's a vibrant life waiting to be discovered, even amidst the hardships.

*written by bard.google.com, its a good tool to have interesting conversations

[DTBI]

Great valid points! Personally I think it’s also worth remembering there are millions of people, worldwide, in worse conditions than yourself

[skydivesurvivor]

wry well written!! It is a challenge for sure, after 20+ years of struggles am still trying to develope the new me! Short term memory is a frustration . Still trying to master!! Looking to find a purpose, after soo lang changes of late. Fortunatly I kept my determination, is often tried though, accepting the changes is the hardest thing. New social life is up-ended of late. Either death or moved into care, been offered so much but my tbi won’t let me explore it, smiles sweetly and go no further?! Sound familiar?

[tunas in reply to skydivesurvivor]

Thank you, but that was not written by me, it was copied from a conversation I was having with an AI, in this case bard.google.com.

Yes my social life is really poor and I really don't enjoy social interaction, I usually end up really angry and frustrated, and now I avoid socializing as much as I can. That though leaves me sad and lonely, it's a lose lose situation really.

As the bot said above I do try to find purpose and meaning, but in the process i get angry and I give up, this happens all the time. My brain seems to block motivation and leaves me begging the question, what is the point!

[skydivesurvivor in reply to tunas]

It’s definitely frustration for sure! What helps me though is to SMILE to spite my tbi?!! Got a funeral in a couple of weeks so will probably see my other bro & sis who haven’t seen since mum passsd. Will be very stressful for sure, maybe I’m kidding myself about my loss of emotions?!!

[randomphantoms in reply to tunas]

When you say you avoid social interaction what type do you mean?

I still have problems with indoor settings.

My walking was getting better but my confidence was lacking. I thought about joining a health "walk".🤪🤣 I aired my worries about walking and could I hold a conversation with the OT.

The OT was amazing. Take a walking pole for balance. As for conversation don't worry about it EVERYONE has an opinion and so long as you can remember that just answer any questions.

I said "walk"🙂😂 because we only ever get to a walking speed with a stiff wind behind us.

Now, many years later, the new me is a volunteer walk leader and part of a group who support each other. Our age range ,in school holidays, is from 5 to 91.

Acceptance is probably the hardest thing and probably the most important.

Wishing you finding peace with yourself, joy in the little wins and the kind of support that helps to motivate you.

[tunas in reply to randomphantoms]

I am glad your walks are getting more interesting! I have found most things surrounding a brain injury, things that initially really get to you, slowly with time improve through simple healing of the brain and active ways of overcoming the challenge. Keep at it!

[randomphantoms]

Please talk with headway or your GP.

"anyway Ill see how long I can take it."

I'm worried by that.

PLEASE talk with someone.

If you are struggling to accept how life is since the brain injury I had a really good experience with counselling.