So frustrating!

[BeeYou22]

Hi guys and gals 😏 I don't post here often but I just had to share how frustrated I am. I had my ABI four years ago and am currently under a brilliant neuro consultant (I know I'm fortunate but it was a real battle to get some action) as I have left side weakness and a real issue with my left leg. I use a stick and am waiting for an MRI of my lower back as they are trying to pin down where my problems originate. I drag myself through each day (chronic fatigue) but yesterday I agreed to join my friend as she was delivering a talk at a local retreat. All good so far? I did my best to help her but sat down for most of it and I did enjoy the afternoon BUT... Oh boy am I suffering for it today. I can hardly move and am in huge amounts of pain and it looks like I won't be getting out of bed today, except for bathroom trips.

I am so sad and frustrated knowing I really can't manage to do any of the things I used to enjoy any more 😪 Yes I pushed myself but I really wish I hadn't. I'm sure there are many of you who experience the same thing and it's so hard to accept it and deal with the fallout.

Much love and warm wishes x

[cat3]

It's hard isn't it Bee. If you've led a dynamic life, settling for one with limitations is a big ask . I now accept that I'll need bedrest (literally) after straying too far from my comfort zone.

I'm presently 'out of action' after completing heavy sorting/cleaning of my cellar, but I can now sit back for a few days with great satisfaction from achieving something I've been unable to face for years ! But I know I'm lucky in having no one else to answer to.

We can avoid meltdown of course by respecting our new boundaries, but sometimes it's hard to find an alternative to 'Pain for Gain' ! It's a lifelong balancing act isn't it.

That old song 'Dust yourself down - pick yourself up - & start all over again' often comes to mind ! Hope you're getting there m'love... 💐Cat x

[Beachlovingkiwi]

yes I can totally relate I’m 4 years since first and 3 since second head injury and after being back at work for 20 hours a week since February I’m now on leave as it got too much - I did the old boom now I’ve busted😬 it’s very hard to limit yourself. I’m a shocker for over doing things as it’s my personality to go hard however now I’m realising even after 4 years I still need to balance things. I try and look at the positives as much as I can and look at how far I have come and fingers crossed it won’t be the same to same degree forever. My husband reminds me also I’m lucky fo be here. Kia kaha (stay strong).

[Nemo24]

Hi I can relate too. Feels like 1 year in since my head injury my life has turned upside down. Recently started working with Occupational Therapist on pacing, resting and planning. Completely new concept for someone who used to do things last minute. Going to do my best to acknowledge and accept changes too. All really tricky I know but you can do it too. Take care