Hi,
I am posting here as a sister of someone with a brain injury and would like to connect with others who are supporting a loved one following a brain injury.
I would love to hear from any friends/family members living with/adjusting to supporting a loved one following a brain injury.
My sister suffered a hypoxic brain injury so I am especially interested to hear from/connect with anyone in a similar situation.
Emma xx
Hi ButterflySundae
Welcome to this forum and hope it can be a good helpful source for you and your family - it certainly has been to mine.
I am the mother of a now 39 year old son who suffered a cardiac arrest Sept 20 which resulted in a severe hypoxic injury due to lack of oxygen. You are welcome to read my posts and see how our journey is going with its many ups and downs. One thing to bear in mind is every brain injury is unique and equally will bectheir recovery/rehabilitation. My best advice would be to think positively, ask lots of questions to the ‘professionals’ sometimes you may need to challenge the answers as often no black and white answers with brain injuries. Our family motto is the same as many more on here ‘onwards and upwards’.
Very best wishes to your sister for her recovery.
Take care Nanapal x
Hi
Although I’m not supporting any one as I had a brain injury myself in 2008 , just having the support of my close family around me made a huge difference to my recovery and I don’t think I would have improved as much as I have without there love and support, so eventhough my circumstances are completely different to yours I know my family mean the world to me
And happy to chat if you ever need any advice
Tom
Hi ButterflySundae
My sister had two head injuries towards the end of 2020 and has been suffering with post concussion syndrome ever since. Although I don’t live with her in the early days I was staying over there and I continue to spend a lot of time helping her with day to day living.
To say it’s been a roller coaster is a bit of an understatement. It’s been difficult getting proper help for her, including even her gp in the early days. You have to persist with everything and challenge when you think you need to even if it makes you unpopular.
This forum has been so good and I’ve found advice that has been really useful. So do post on here if you want to ask anything .
The thing is you can only take one day at a time, especially I found in the early days. And try to remain positive. Are you the only family member helping your sister?
Try to take care of yourself as well.
Take care, Helen
Hi Emma. Welcome to the community. This is a safe forum for you to connect with survivers and carers. There is someone here whenever you feel you need a chat. Nothing is too small or too big to ask. Everyone here has lived experience from one angle or another. Also if you need, contact Headway helpline, their contact details are pinned to this page. They have a wealth of knowledge to share, and have information in various formats. They also provide day services for people to socialise as they continue on the journey of rehabilitation. 🍀
Thank You for all the replies.In answer to your question Helen, yes I am the only family member. My mum died four years ago and my older sister lives in Australia so it is just me and my younger sister.
I am really struggling with the unknown. It is so hard to take one day at a time when you just want to know what the longer term will be like.
At the moment she is in a Level One rehabilitation unit and they say she will likely move to a Level Two and then from there to a long term care facility but then sometimes I see her and she seems to be doing well and I think maybe there is a chance she will make a full recovery and go back to being who she was and live independently again … but I don’t know if that is just me having trouble accepting it all.
Hi and welcome to the group!
My husband suffered a hypoxic injury early December 2020. There have been many ups and downs as I'm sure you've on this forum read and will read by many's future posts.
As for my husband, he was discharged in May last year and let's say we've been rolling with the punches...and the small gains daily since then. This is such an important group because some days you just need a space with like minded people who understand and who can sometimes just listen and hear. ❤️
Hi Emma,
Slightly different circumstances here as my wife's brain injury was a traumatic accident but not hypoxic. I think we may be on similar pathways though. She's currently on an acute rehab ward but will move at some point to a non-acute rehab facility. I'm actually not sure where she will move from there but I guess it will be into some form of care setting and then maybe into some kind of home setting (although our house isn't likely to be suitable but that's a different discussion).
Like you I'm struggling with the unknown and would find it easier to cope if someone could tell me exactly where she'll be in 3 months, 6 months, a year etc but I need to accept that brain injuries don't work like that.
So I can't really offer you any help/advice except, as said above, that this forum is a a safe and helpful place.
Hi Emma,
My daughter had a traumatic brain injury in 2018 and I have found it very difficult to accept - that it happened in the first place and the subsequent lifelong disabilities that are now a part of life. Being on this forum has helped as everyone on here understands, and for me, that brings a sort of relief. I am trying to come to terms with it by trying to change my pattern of thinking from a negative one to more positive - focussing on what she has achieved and can do rather than what she can’t.
Good luck to you and your sister 🙂 and you can feel free to talk here anytime you feel the need.
hi my husband sustained a hypoxic brain injury in december 2020
his been rehab for 6months and was discharged home
my husband needs 24hr care as he has very severe cognition problems wen he was discharged from the hospital he couldnt walk 3people had to assit him but now he can but still quite unsteady he is improving every day but still has cery bad short term memory he can now brush his theeth have a shower make a cuppa with assistant a year ago my husband was bedbound so it does improve with love and time
my husband has severe chorea involuntary movements thats because of damage to the basil gangila
he does not talk only sometimes and has a very poor sleep and wake cycle where he would not sleep for 2days at all and than will sleep for 18hours or more
how did your sister sustained a hypoxic brain injury how long has it been and what are the docs saying
this forum has gave me so much hope do keep us updated
Hypoxic brain injury 
Hypoxic brain injury
Hypoxic brain Injury
My partner is currently in rehab after suffering hypoxic brain injury 7 weeks ago.
