Husband is now at the end of his second week in the rehab ward. He has managed to relearn to sit , and can now be taken in a wheelchair off the ward and outside to see our adult children,for about twenty minutes, and he's been in the standing frame with slightly lessening support - he can hold his left hip in place for a couple of minutes . There is no movement at all in his arm . The physio met me on my way out yesterday, and said " he's doing well, but I need to be sure you understand he has had a significant weakness,you understand that don't you?"
So yes, I do, I'm not expecting him to be running laps round the bed pan next week,but is she trying to tell me something else? To aim low? How low? It's kind of taken the wind out of my sails a bit- I was so pleased that he had made some progress and started to dare to hope we could avoid a wheelchair all the time . Am I being unrealistic? They were very specific that they couldn't give a prognosis yet, but is she trying to soften my fall?
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knitandcrochet
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Hi, So after two weeks of rehab they are deciding his fate.
They normally say two years is a cut off for recovery from bi. That does not mean you stop improving.
Personally initially I was in a wheel chair and was left with left side weakness. It was a long slog but today I am still upright , yes my left side is weaker and there are times I use a stick.
They also said I would end up in a wheelchair in my fifties. Well that hasnt happened.
Basically no one predicted his bi so how can they predict his final recovery. They can give you an estimate and nothing else.
I can also understand keeping expectations real but feel that eventually you will know when his limits are reached.
I echo what paxo said too, but I think and this is just me that they can't tell you anything hopeful in case it doesn't happen and then you sue them, so they edge to worst scenario first, also they probably don't know, surely the brain is very complex and not all known about and each person is different in their way of dealing with it,keep strong and one day at a time,
My family weren't given a prognosis for many weeks. Protocol for Consultants and nursing staff is to remain neutral because they cannot predict how each patient will fare long-term. My prognosis ranged over a period of 3 months from poor to questionable to promising to good then to very good !
Avoiding giving false hope makes sense and doctors are trained to be supportive but guarded. But sometimes their attitudes can come across as negative even in neutral or promising situations.
From what you've told us your man looks to be making good progress in a process which can take many, many months. Be prepared for a long haul m'love but there's every reason for hope.... Best wishes, Cat x
Sounds promising after only a few weeks..keep yr hope...my husband had an acc in Nov 20..in ICU 28 days..and rehab 2 months..they were looking at all options..I would have dealt w anything they gave me..and I did..but hope kept me going..he had to learn to walk eat etc again..at home for 5 months miraculous recovery....keep the hopexx
Oh I feel for you- but really they are only managing expectations. When they started talking about taking my husband off life support if he doesn't start breathing soon I freaked and told them without a second and third opinion no one would do that. I have an enduring power of attorney which helped. Fast forward five years- he is living at home -ADLs are seriously dodgy but we enjoy our life together. He was making massive progress even though he had suffered a severe hypoxic brain injury. Unfortunately there were a couple of strokes last year which have put things back a lot. Long story short -what I am trying to say is stay positive! The brain has an amazing ability to regenerate. And my guy was 63 when theworld changed for us. Best of luck!
Aim high for you both and your children, doom and gloom OUT positivity IN. Well done for your husband for doing so much in such a short time. Please take care love Liz xx🙏🌹
i would say welcome,not appropriate,sent with love anyway.we kinda like the the tough guy group,we very strong mothers.dont be scared/ever.we here for you whatever you need to ask we can help you.not alone ever dont be alone we got you...
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Diffuse Axonal Injury
Hypoxic brain injury recovery
Post Traumatic Brain Injury
Axonal Diffuse Injury
Stimulating the mind of someone with brain injury
