"HAPPY BIRTHDAY"!!: Wow,emotional..so sad,happy... - Headway

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"HAPPY BIRTHDAY"!!

Dogsabighelp profile image
Dogsabighelp

Wow,emotional..so sad,happy,grateful...the bad first,had to wear full ppe( goggles everything)OK then.they had banners/balloons for his birthday.very thoughtful and I was touched by it.he is more animated with actions.I watched him pull up jams bottoms,scratch his leg,and pull back down.I told him face mask was giving me headache he put his hand on my head.several times he pointed to me and his chest.obviously he was asleep at my last visit,this only the third,but it was a good day..travelling there skies opened with real heavy rain sleet,all stopped when I left bus/and the same coming home.fortune favoured me today,I am glad of it...

29 Replies

Happy Birthday to your son; may of been grim outside but brighter inside and within. X

For sure,a good dayxx

Good to hear.

Hope its not inappropriate to send birthday best wishes🎉🎉 but every little positive must help.

Its a long haul but at least you feel calmed slightly. Keep us all updated as usual.

Best

❤️

Dogsabighelp profile image
Dogsabighelp in reply to Shreds

Thankyou so muchxx

Wow D, your son's awareness seems to be building and you must be thrilled that he showed a response to your headache and signaled his love for you. And how lovely that staff celebrated his birthday. Shame about the full PPE but great that he saw through it ! Such promising news m'love ; I'm so happy for you both ! xx

Dogsabighelp profile image
Dogsabighelp in reply to cat3

Hey lovely cat,boy did I sleep last night!didn't wake up till 8.15 little socks was crossing his legs!!!

cat3 profile image
cat3 in reply to Dogsabighelp

Ha ha...poor Socks, but that sleep was surely well overdue. It's a joy seeing you so much more relaxed D. So a happy birthday for you both ! 😑 xx

Dogsabighelp profile image
Dogsabighelp in reply to cat3

So,thinking of you and our mutual love of "show tunes"...socks has a " play date"with next doors grandkids at 4pm.I've found DVDs Evita,west side story and my favorite of all time..fiddler on the roof!showing my age now!got crisps,bag of sweets and bottle wine.they have space hoppers but I can see the hose pipe....happy friday😜🐕‍

cat3 profile image
cat3 in reply to Dogsabighelp

A group of us from work went to see Evita on stage in Manchester in the 90s and the performances were amazing, especially 'Don't cry for me Argentina' which had the audience on their feet. But West Side Story (for me) is probably the best musical ever.

Hope your DVD of choice was a good diversion (and didn't make you cry too much). It sounds like Sox and friends had a ball ! Great post D and lovely to see you're getting some respite. 😐 Onwards & upwards... xx

Dogsabighelp profile image
Dogsabighelp in reply to cat3

Naughty dog didn't come home till 8 pm!chicken nuggets/ pizza doggie heaven..I watched fiddler on roof,cried all the way through it cat,I always do...xx

cat3 profile image
cat3 in reply to Dogsabighelp

🤍 x

Dogsabighelp profile image
Dogsabighelp in reply to cat3

Socks has new collar.very good feathers and pom POM's.I'm not feeling good think cold is coming..

cat3 profile image
cat3 in reply to Dogsabighelp

Paracetamol and plenty of fluids for a few days I reckon D. Hope it's not such a bad one. Look after yourself.

Feathers & pom poms ? ...bet he's the talk of the town ! 😃 x

Dogsabighelp profile image
Dogsabighelp in reply to cat3

Its hay fever,actually makes me sick,my tongue sore with the cough sweets...like you need it?

cat3 profile image
cat3 in reply to Dogsabighelp

Many years ago, someone suggested a teaspoon of honey and 2 desert-spoons of Cider vinegar stirred into a glass of water as the best remedy for hay-fever. After using antihistamine for my son's hay-fever and no improvement, I tried it for him with excellent results.

He preferred the taste after I started mixing up a whole bottle full and refrigerating it overnight. He had a glassful before school and another after tea. It still works well 40 years on !

It's apparently an old established remedy in farming communities where farmers had to carry on working despite severe symptoms, presumably before the days of antihistamine.

Just a thought D..xx

Dogsabighelp profile image
Dogsabighelp in reply to cat3

Well well I have these things to hand.let you know cat,as ever,font of wisdomxx

cat3 profile image
cat3 in reply to Dogsabighelp

Ha ha ...nice one girl ! Hope it helps, but it needs to build up so keep it going to test it out.. Let me know how you get on.. xx

Wishing your son happy birthday. It's nice to see that there are positive responses for your son and yourself. Rain once you are wet, it doesn't matter how much it rains, you can't get any wetter. X

Hi ian,was just telling cat what a good sleep I had.I didn't get wet at all yesterday,the "powers that be" decided to give me a good dayxx

How lovely for you and your son. A very emotional day for you which will have taken its toll, pleased you managed a good sleep. Here’s hoping this good day is the start of many more for you both. Best wishes Nanapal. x

Dogsabighelp profile image
Dogsabighelp in reply to Nanapal

Hey nan how are you all?soo much better y/day,I mean,I'm due a break from crap?you must,I think live close to me,you mentioned peterlee regarding your lad?have you had any luck?just a thought,maybe Sedgefield.. My neighbour mentioned it to me(he has m.s and knows about this place)I'm going to have a look,it could be something for me to consider in future,I'm literally on the doorstep will let you knowxxx

Nanapal profile image
Nanapal in reply to Dogsabighelp

Hi D we are getting along as best as we can. We have some concerns about the lack of speech our son has at the moment. We haven’t heard him say a word since March 14th - a new medication was introduced on 16th March Gabapentin to try and help regulate his day/night sleep pattern as very mixed. Unfortunately all it seems to have done is increased his fatigue and stopped his speech - seems too coincidental not to be medication side effects. Consultant listened to our concerns and agreed this medication did not seem to be agreeing with him or combined with other medication. They are now in the process of slowly taking him off this - 🤞he gets back to speaking with us. We are in Seaton Carew, Hartlepool so seems we are in same area. Still no further forward with nursing care placement as CCG funding meeting is still to take place - not even a date yet & proposed new discharge date is mid June. This waiting game is very stressful as it seems everything is left very late - but we will get the appropriate placement for his needs and don’t care how long a battle that is. Hawthorns at Peterlee does seem the best equipped for his present needs but any recommendations are welcome. Nanapal. x

Dogsabighelp profile image
Dogsabighelp in reply to Nanapal

Knew you were not far away,I'm ferryhill Durham.I know seaton well.when dog was pup and son was "normal" we used to go most Fri or sat,take him for run and get fish& chips(and a sausage!)or blackhall rocks/crimson dene..I'm from Wingate originally.isn't it strange?xx

Nanapal profile image
Nanapal in reply to Dogsabighelp

Yes it’s a small world D. It’s nice to be able to help each other along whether with with advice, support or just a few understanding words. Take care. Nanapal. x

Dogsabighelp profile image
Dogsabighelp in reply to Nanapal

You and I are going to meet one day nan and share a bag of chips my friend..(I'm getting scrapings!)

Nanapal profile image
Nanapal in reply to Dogsabighelp

That will be nice D. x

It’s so nice to hear you had a nice visit and how lovely of the nurses to celebrate his birthday!Very reassuring to know that he seems much more aware x

Hey thanks,it was lovely,he was lovelyxx

Glad things went well D x

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