Tbi: Hi, i just recently 3months ago had a motorbike... - Headway

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Tom2204 profile image
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Hi, i just recently 3months ago had a motorbike crash and suffered a defuse axonal injury im only 18 and healing so well but still getting symptoms from the crash. Does anyone know how i can deal with the stress from taking epilepsy tablets because i had 3 tonic clonic seziures 7 days after the crash but haven't one since have a review soon but still so scared about the epilepsy more then anything

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Tom2204 profile image
Tom2204
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sospan profile image
sospan

Hi Tom glad you are here in many ways!

You have gone through quite a lot of scary things physically and emotionally and

they will take a while to settle down.

The most important thing at the moment is to keep making steady progress and not push it at all, Being young, time is on your side and it is the long term game you are now playing.

After nearly 10 years on this board this has been a lot experience shared on seizures. What a lot of people have mentioned is that over time the frequency between episodes increases over time. Until they can go for a year or more without experiencing another. Many people even resume driving.

It is however, different for everyone and you cannot predict at this early stage what your path will be. However, the good thing is, you have age very much on your side.

Keep up with the meds and keep in touch with the specialists and GP's but don't be afraid to reach out to other groups as well as this one.

All the best on your journey

Pairofboots profile image
Pairofboots

Hi Tom, I'm sure you will have been told 'it is early days' . That phrase will last for what seems a long time.

Brains take a long time to heal, reroute processes around the damage, and parts being called up to do things in place of the damage.

Epilepsy is reasonably common following brain injury, and can be well managed with anti-epileptic medication in most cases. Any episode is an assault on the brain, so the better it is controlled, at this stage is good in tandem with your overall recovery.

As sospan says you have age on your side, but unlike a broken bone, it isn't a quick fix, and patience is required, probably difficult at your age.

Your optimal recovery can't be predicted, and the range of recovery is unknown. Will epilepsy stay, again this is unknown.

Like many of us here, we have been exactly where you are now. I'm glad that you have found this forum, it is a safe place to share your thoughts.

Also access Headway for a group near you. I hear you say day centre, not for me. I thought the same, but it was the best thing I did, I regret that I don't fall in a catchment area where I moved. There is a wide age range of people that all understand, and can share experiences, and the staff are great.

You are running a marathon, and there will be time's the hills seem impossible, but with support you can reach the top.

I wish you well Tom, and keep in touch.

Ian

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