Hi today I found out as a child is suffered a ABI. I'm not sure what to do next

[Newbeginger]

Scary stuff Brains are. I'm today finding out about my brain. I'm lost. Don't know what to expect and do next.

[Marnie22]

Hi there. The best advice I can give you is to telephone the Headway helpline on 0808 800 2244. They are amazing and can offer you excellent support and information. Their website is good too, but I would advise starting with the helpline as there is a lot on the website and you might find it a bit overwhelming until you get some clarity by talking to the helpline. Before you call the helpline, it's a good idea to make a few notes about what you already know, what information you would like to get from the call etc. You could also make a few notes when you are taking with Headway.

You might be interested in getting in touch with your local Headway. The helpline can give you details and it will also be on the website.

I do wish you all the best. 🙂🌸

[Pairofboots]

Hi Newbeginger, you say as a child you experienced an ABI. It can be shocking when you find out something that that happen before you remember. Think about:

Does this change who you are now?

Does this possibly explain any problems you may have had growing up?

Does this possibly explain problems you are experiencing now?

If the answer is yes, then you have a point to start working on to make things easier.

If the answer is no, then it is unlikely that new investigation will change anything.

Ok, I have an ABI, but as a young adult I found that I was born with a hole in the heart. I found out quiet by chance. It did explain why my mother had a fit everytime I pushed the limit's physically. Unfortunately she passed away by the time I found out, and I'm sure she would have explained if asked. Instead I only had my dad to ask, and he was quiet dismissive, as if it was nothing. To me, it was something, and I needed answers. My dad's attitude, you had it, it closed naturally, end of.... This just stoked my worry and anger, it drove a wedge of mistrust between us. As I got older, I realised, that it was nothing, the worry was a waste, the anger was needless.

Ok this example is a different issue, but I hope it helps you to put things into perspective.

Take care

[cat3]

Hi Newbe.. Can you explain the nature of your brain injury and of any symptoms you believe may have resulted from it. From hereon in it might be you'll need therapy or counselling in dealing with the knowledge, and any suspected leftover issues.

A brain injury can leave behind any number of long-term after-effects but, without details of those or the type of injury (and/or treatment), it's impossible to gauge what your next course of action should be.

Hope you'll come back with more details...... Cat x

[Newbeginger]

I have many flashbacks. Not in the correct order. I was neglected a a child. Bumps and knocks ect. I have a personality disorder.

[cat3]

Unfortunately, this is the worst time for neuro assessments whilst the NHS is tested beyond its limits.

Hopefully vaccinations for Covid might have eased the situation by the summer, so maybe ask your GP to get a referral in now for neurological assessment and whatever therapy or treatment is then deemed appropriate.

Meantime you could, as Marnie (above) has suggested, phone the Headway helpline for information on coping with brain injury until the neuro services are able to offer appointments more readily. The helpline staff can talk you through you issues and offer advice and reassurance. Good luck m'love. Cat x