Update

Since my last post over a week ago we’re my wife had her meds changed the difference has been remarkable. She has become more focused on her rehab, after an emotional period which I know there will be more I’ve never seen my wife with some much determination and a willingness to succeed. Since her last Skype physio with the family two weeks ago the difference in her ability has been astonishing in the recent Skype session conducted this Friday. From someone who couldn’t even sit up and basically a body on a bed with no connection to the left side she’s walked assist on through the parallel bars at week 2 to walking assisted with a walking aid about 45 mtrs in totally, I’m totally blown away by her courage and fantastic rehab team in Lincoln County Hospital.

[tillymint16]

Very best positive wishes to both of you on your journey.. 👍🏻👍🏻👍🏻🙏

[sospan]

Thats good news

With all our injuries time is very important even week by week people can get small but significant improvements. The same with medication, it takes a while to sort out the correct medication and doses plus a lot of patients / family aren't told is that they can take weeks / months to effect a change.

Glad for you and your wife that things are on an upward curve

[cat3]

What amazing improvements in just over a week ! Hopefully others in similar situations will be reassured and encouraged by your news ; good news stories are always great to hear.

I've had personal experience of 'wrong meds' making me ill ……..and what a massive relief it was to my family (& me) that something so simple could turn things around, virtually overnight. I'm so happy for you Colin ! 😐

All best wishes for your wife's continuing improvement over the following weeks and months...… Cat x

[Hidden]

Thank you all it’s been an amazing week for us x

[TaIaV]

So great to hear of this. Your admiration for her spirit is clear and that, I am sure contributes strongly to her determination and satisfaction.

[samanthaash1993]

Awesome! Well done to her! I had something similar where I didn't want to accept i had to use my white cane in order to get around independently! It took about 2 years, but then I finally accepted it, and now won't go without it. I hope she is well today. Was abi or TBI she had? I have an abi also, but mine was a month after birth so we've been floundering in the dark for years wondering what was happening to me, then only just connected that the behavioural issues I have, lack of empathy and insight, as well as sometimes using inappropriate language, but not rude or swearing, is probably related to the haemorrhage which also caused my epilepsy 18 years after I was born. I reckon over time, the affects are becoming more pronounced but we never knew. So now I want to work with other people with ABIs. Well done to your wife! Keep going. Just think how happy you are because everyone else is happy and how good you feel that you've achieved something! Then eventually, you can try walking round. Think that eventually, you can walk around on your own. Hahaha! How is her speech?

[Hidden in reply to samanthaash1993]

Hi, my wife had an aneurysm causing a severe bleed, initially attempted coiling but it didn’t work due to the size of the bleed, after the clamping they noticed signs of a stroke after the surgery which has effect the left side, her speech once she could talk once the tracky was out was a bit slurred but again this has dramatically improved and now is a little weak at the back of her tongue which she’s working on and actually can only be noticed when she tired. She does appear to have a totally different attitude to life is not afraid to tell you what she thinks anymore but in a positive way although her patience is limited hence why we made the decision for contact only with immediate family which my wife has agreed she lose it with some of are friends and family. My daughter who works in maternity in a different hospital and my son have been a rock for me allowing me to hopefully be that rock for my wife. She is truly an amazing person who has survived breast cancer and hopefully now on a good steady path on her recovery. She truly lives up to what I was taught in my military career with short-term pain for long-term gain. However I’m fully aware she had such a close call and extremely lucky.

[samanthaash1993 in reply to Hidden]

Ouch. You are both an inspiration too. I hope you are well.

[Hidden in reply to samanthaash1993]

Had my moments that’s for certain but now I gain strength from my wife’s courage.

[samanthaash1993 in reply to Hidden]

[Marzi75]

Hi, this is the first time I posted in this. My niece aged 12 had a near drowning while out rowing. She suffered a hypoxic brain injury and had a form of locked in syndrome for some time. She was put on high level anti psychotic medication to help her through that period. She has 50% damage to her thalamus but the rest of her brain is perfect. Thankfully she came out of that. Cognitively she is perfect, short term memory can be a bit of a challenge. Her speech is good but slurred when tired. She has ataxia as a result and cannot walk but can take a few albeit wobbly steps with a frame. Recently my sister(her mom) felt the meds were doing more damage than good. They have started weaning her off and we have noticed a major difference in her mood, motor function and behaviour. Delighted to hear you wife is doing so well. Every bit of improvement is amazing. She amazing me everyday that she is here. Any person overcoming a brain injury is truly inspirational. I had no idea of the daily challenges people faced because abi / tbi. Wishing you all continued recovery. If anyone knows of any treatments that might assist my niece I’d be truly grateful if you could let me know💙❤️

[sashaming1]

Congratulations to your wife!

[Hidden in reply to sashaming1]

Many thanks 🙏🏽