Hypoxic brain injury : My daughter had an out of... - Headway

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Hypoxic brain injury

Sophiemorgan profile image
9 Replies

My daughter had an out of hospital cardiac arrest they say on paper starved of oxygen for 90 mins ( not possible ) so anyway she is now left with severe brain injury .. she was also given a less than 1% chance of survival at least 3 times .. but she is still with us and she lol and crys always on command .... this all happened oct 1918 my question is can someone give me some advice .. im worried as weve not seen her for 5 weeks (corona virus ) inursing home rules ) she is aware when we are with her and gets all excited on hearing our voice .would hate to think she just laying thetr thinking we have all given up on ... any response would be grately apprieated x my daughter was 40 time of event

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Sophiemorgan profile image
Sophiemorgan
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9 Replies
lunaa profile image
lunaa

Hi Sophiemorgan

My daughter now 26 went into cardiac arrest 2019 out of hospital - down time 30 mins and now had severe brain damage. This is a club none of us want to be in and it is so stressful not being allowed in to see her. I am worried and anxious as she was transferred from hospital due to covid 19. She has a downstairs room so I can see her through the window but they do not understand the complex needs. We have to hang in there this cant go on for ever xxxx

cat3 profile image
cat3

Sophie and Lunaa, I just wanted to offer my best wishes & kind thoughts to you both.

Sophie, can the nursing home staff not accept calls from you and allow your daughter to listen to you voices for a few minutes at least, for occasional reassurance...…...or even send recordings she can listen to repeatedly ? x

Sophiemorgan profile image
Sophiemorgan in reply to cat3

Thanks for caring no they say they dont want to bring anything in thats not already there and no they say dont ave the amenities grrrr

cat3 profile image
cat3 in reply to Sophiemorgan

Such a shame, especially as small devices are easily disinfected. It's such a harsh time for many, but especially those separated from loved ones at times of great need. Thinking of you.....

Cat x

cat3 profile image
cat3

Sophie and Lunaa, I just wanted to offer my best wishes & kind thoughts to you both.

Sophie, can the nursing home staff not accept calls from you and allow your daughter to listen to you voices for a few minutes at least, for occasional reassurance...…...or even send recordings she can listen to repeatedly ? x

Sophiemorgan profile image
Sophiemorgan in reply to cat3

Thanks for caring no they say they dont want to bring anything in thats not already there and no they say dont ave the amenitie

lunaa profile image
lunaa

Hi Sophie

This seems very harsh and shows that different nursing care homes are following different rules

What about keeping a small diary ofhow you are doingeach day during this difficult time and then you could read it to her once the ban is lifted

Have you tried talking with your daughter's consultant x

Sophiemorgan profile image
Sophiemorgan in reply to lunaa

Not available due to corona. but yes i will do that sounds like a plan thanku and hopefully they will lift it soon ...then when it is she said only one person can go and see her .. which is not good she has 5 children set of twins youngest who are now 3 only one at the time her eldest child who is 23 took on twins but they all really need to see there mum so yes very harsh ... i can see where shes coming from and we need to keep my daughter safe but kids need to see there mum also .... thanku for caring babes really appriete some one to talk to xxxc taje care

lunaa profile image
lunaa

Bless take care Sophie you can talk to me any time only people in the same position really get it

x

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