Post concussion syndrome: My son has been diagnosed... - Headway

Headway
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Post concussion syndrome

Cose
Cose

My son has been diagnosed with post concussion syndrome after 3 years. He is being treated for eye problems following accident visual shifted and 3 other eye diagnostics and needs 8 months of rehab. Its frustrating it took so long. He had contant headaches and we are thinking of cbd oil.

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Best wishes, Cat x

Cose
Cose in reply to cat3

Thanks👍

Having post concussion syndrome myself and been told oh you can’t have it longer than 2 years, then Headway told me that isn’t true. I’ve been treated badly by some Drs just dismissing me, using depression as a issue, I was in a 100 mile hour head on RTA and you think I might of had compassion but Drs treated all definitely. So 5 years later I got property diagnosed with chronic migraines and post concussion syndrome with functional overlay all at Kings hospital LONDON who have been brilliant. But it’s a hard road when comes to brain and they can’t see something on MRI’s or not the normal head injuries. Good luck with it all, and getting best treatment xx

Cose
Cose in reply to Womble18

The same for my son but all the time it was his eyes it took so long to diagnose and it was his physio who saw it drs are not that great

Hi,

I have post concussion syndrome and about 10 months in I visited an oesteopath which helped dramatically- have continued doing the recommended exercises daily over the past few months. Obviously everyone is different with what works for them/ I still do struggle and have lower limits than before but is it definately what has helped the most so far inmy recovery. All the best.

what has the docs suggested? its not really for you to pull something out of the air and decide your going to try it.

Cose
Cose in reply to steve55

Absolutely

Cose
Cose in reply to steve55

you did the right thing

steve55
steve55 in reply to Cose

i was talking about you thinking of trying cbd oil. why doesnt your son go back to his gp explain and hopefully hell be referred for a mri scan.

Cose
Cose in reply to steve55

I found the diagnostic myself by never giving up had 8 doctors they never saw anything even neurologist my physio put himself in his books and found one diagnosis. My manager gave me a head up and then was connected with a clinical nurse who comfirmed diagnosis. He is being treated by pupils vision for 8 months rehab after 3 years of headaches due to his eyes. I do research on my own i will take to the vlinicsl nurse of trauma and ask opinion see if I can get prescrrption for it md have not been great for me

Cose
Cose in reply to steve55

already had MRI and is normal

you keep going back to the gp and banging on his desk to do something, you dont go through books in the hope that one day youll get it right.........by that time you could have fucked him up for good.

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