Something worse than brain injury: youtu.be/DP... - Headway

Headway

10,529 members12,827 posts

Something worse than brain injury

BaronC profile image
28 Replies

youtu.be/DP0dVbnPpM8

Written by
BaronC profile image
BaronC
To view profiles and participate in discussions please or .
28 Replies
cat3 profile image
cat3

Sorry it's come to this my friend. Thinking of you, your dad and all his loved ones at this most testing of times.

With love, E.... xx

BaronC profile image
BaronC in reply to cat3

Thanks, sweetie xx

Mufc profile image
Mufc

There is nothing you can do to help your father get rid of the cancer what you can do is be there for him and help to enable him to live the end of his life as he wants to. I take it he is not having to much pain? Now days medical people can help control the pain. Just be there.

Mufc

BaronC profile image
BaronC in reply to Mufc

Not in too much pain, no. Just sleeping, virtually all day

Mufc profile image
Mufc in reply to BaronC

I use to be a specialist head and neck and lung cancer nurse. Sleep is his body’s way of trying to accept and fight it.

Kirk5w7 profile image
Kirk5w7

Andy my heart goes out to you, cancer has to be the hardest to live through for the whole family.

There is no need to explain to us, if i could shoulder it dor you i would, one of lifes cruellest blows.

We are all here for you.

Love

Janet x

BaronC profile image
BaronC in reply to Kirk5w7

Thanks Janet, that means a lot xx

Hi Andy,

I also haven't been around much for the same sort of reason - my husband has had cancer of the blood for 5 years now and we have now been told that it is terminal, he has only a few months to live. The thing I wanted to suggest to you is that you contact your local hospice, ours has been wonderful at giving me a chance to talk things through, sort out how we want things to end, helping hubby too.

If not, ask your doctor is you can get visits from an Admiral nurse or someone from MacMillan. They are great at helping you to cope with the feelings this brings to the family.

Best wishes to you all (and hope the house move isn't too stressful)

Jan x

BaronC profile image
BaronC in reply to

Thanks Jan. We are already at that stage and my mother is having talks with a MacMillan nurse as and when. We really are at the 'end game' stage now. It's hard going. So sorry to hear you're going through the same thing, I'm genuinely thinking of you and sending you both my very best wishes x

iforget profile image
iforget in reply to BaronC

Andy so sorry to hear this news. I was also going to suggest getting in touch with your local hospice. Its never too early or too late to get them involved and they take care of the patients and also support the whole family unit through the entire process and beyond.

When my Mum was diagnosed with terminal cancer in 2015 I was the only one around to support and care for her and the support they gave at the time was invaluable. When I explained to the team that I had a BI they were extra supportive, asking what I needed and how they could best help me - without assuming what I needed, as well as providing support and care for my Mum. They proved to be lifesavers even months after she had died and I got bereavement counselling there for free.

Life is a cycle and when we are born, eventual death is the only sure thing. I always knew that one day my parents would die, its the natural order, but nothing quite prepared me for the reality of it all. It is tough...but spending time with your Dad, just listening/ talking or sitting quietly, is probably the best thing you can do for him and for you. Near the end when my Mum was sleeping a lot, she used to open her eyes every now and again and would smile when she saw I was there. I like to think it helped her. I know it helped me to be there.

It is important that you all take the best care of yourselves possible while all this is going on. I hope the process will be a peaceful one.

BaronC profile image
BaronC in reply to iforget

Thank you very much. All is in place, carers are on board, MacMillan are on our side and everything is in place while the cruel waiting game goes on...

Thanks Andy. All good wishes to you all.

Alice5 profile image
Alice5

So sorry to hear about your dad, must be so hard to bear. Thinking of you and your family xx

BaronC profile image
BaronC in reply to Alice5

Thank you, I appreciate it

sue-66 profile image
sue-66

I nursed my husband when he had terminal lung cancer and the support from family and friends and macmillon were so helpful. Hugs to you and your family Andy x

BaronC profile image
BaronC in reply to sue-66

Thank you so much

Ossmh profile image
Ossmh

So sorry to hear this, it must be so hard for you all. Thinking of your own words that have inspired so many. Your BI doesn’t define you. Cancer doesn’t define your father. Your love, wonderful memories and the precious remaining time with him does. Wishing you strength & peace

BaronC profile image
BaronC in reply to Ossmh

Thank you, very much, most kind

Cj-195 profile image
Cj-195

Hi, it's so very hard for you and your family. Last yr I lost a man with it. There's no choice but be strong for your dad. I thinking about you. Xxxxxxxxxx

BaronC profile image
BaronC in reply to Cj-195

Thanks, we're all doing our best

swedishblue profile image
swedishblue

That's so sad. I agree with the comments above, more especially Mufc - being there to enable him to live his final days as he wants to, surrounded in peace and love. Be strong as I know you must. xx

BaronC profile image
BaronC in reply to swedishblue

Thank you

cat3 profile image
cat3

My brother died 3 years ago after a long stay in Christie's hospital. I said on one visit that the situation (his age, recent retirement & our love of him cut short) was sh*t, but he replied "It is what it is ; no more, no less', and went on to put everything in order for my sister-in-law, writing out all possible useful information on practical matters in the home and a letter of farewell to everyone.

He even arranged for a taxi to take him to his best friend's bedside in another hospital to say goodbye. Heartbreaking ! But time ticks away and we cope as we never believed we would. It's sad that those times are often the closest in a whole lifetime ?.

Been thinking of you m'love………… E. xx

BaronC profile image
BaronC in reply to cat3

E, you're a diamond, thank you. The support means so much x

DaisyEvans profile image
DaisyEvans

So sorry to watch your video and hear your sad news. Sending you and your family very best wishes and I know I’m new here but please don’t apologise to us! Don’t know what else to say, thinking of you. X

BaronC profile image
BaronC in reply to DaisyEvans

Thank you, being new matters not! All the good wishes are very much appreciated

aqua4 profile image
aqua4

Hi Andy. So sorry to hear about your Dad. Thinking about you all and thanks for the support and kind words you've given to me and everyone on here in the last few years. Take care. Kx

BaronC profile image
BaronC in reply to aqua4

Thank you so much, the support is invaluable to me!

You may also like...